Recent content by kelliemarie

Gorf, Thanks for the advice I really do appreciate it. It is hard because I am not competitive but I guess he is. I just wish he would let me be good at something for once and feel good about myself. It is just that much harder because I couldn't run cuz of my stupid CF, not because I do not...

So I need some opinions on if my feelings are in check or not (please and thank you in advance). I am living somewhere away from family, in a new area where I am having trouble with my CF, and where I cannot find work for anything. To keep myself feeling accomplished and of worth, I started...

Hey there fellow military CFer! From what I understand, if your doctor does provide you with a note such as yours, you should be able to apply for a move no problem (at least that is what I have been led to believe). Go to your EFMP coordinator or case manager to further the process. If you...

I know this was from a long time ago, but I am so glad to finally see someone with CF married to the military!!! As for the climate issues, I am from Colorado originally and moved to Florida, the humidity definitely makes it feel more difficult to breathe. Also I feel a whole lot more junky and...

I get really bad photo sensitivity reactions as well, but I have something that is called a Lupus Antibody (Cogulant). We only found out about it when my mediport developed a sheath around the tip and did blood tests. I guess this antibody can produce photo sensitivity as well though. I have...

Palmera, I am a CF patient so I don't know and can only imagine what you are going through as a parent. I do want to let you know though to not let this disease get your family down. I am a homozygous DF508 who just turned 23, is married, and just finished college. I currently am 99% FEV1 and I...

Hello! I am a recent Biology Graduate who has the exact same interests as you. I grew up wanting to be a marine mammal trainer at seaworld, my wish trip was to swim with and help train the dolphins at seaworld. The more I found out about the field, the more I realized that you have to be...

Hello! I am a recent Biology Graduate who has the exact same interests as you. I grew up wanting to be a marine mammal trainer at seaworld, my wish trip was to swim with and help train the dolphins at seaworld. The more I found out about the field, the more I realized that you have to be...

Don't worry too much about it yet. My family at first freaked out when I cultured it and So far I have not ever had a problem with it(7 years later). Just keep up with treatments and you will fight it off fine I bet!

Don't worry too much about it yet. My family at first freaked out when I cultured it and So far I have not ever had a problem with it(7 years later). Just keep up with treatments and you will fight it off fine I bet!

Don't worry too much about it yet. My family at first freaked out when I cultured it and So far I have not ever had a problem with it(7 years later). Just keep up with treatments and you will fight it off fine I bet!

How has the EFMP affected your moving to areas? That is the one thing I am most concerned about. I originally was seen at Denver Colorado Childrens hospital and the most recent cf center I have been seen at does not seem as comprehensive of care. What have you been finding?

How has the EFMP affected your moving to areas? That is the one thing I am most concerned about. I originally was seen at Denver Colorado Childrens hospital and the most recent cf center I have been seen at does not seem as comprehensive of care. What have you been finding?

How has the EFMP affected your moving to areas? That is the one thing I am most concerned about. I originally was seen at Denver Colorado Childrens hospital and the most recent cf center I have been seen at does not seem as comprehensive of care. What have you been finding?

I alternate with Cayston and Tobi like you, but sorry this might sound weird, but from what I understand you use the altera neb to do 1/2 of the vial of tobi? Can you do that like does it nebulize correctly?