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Recent content by live2breath

  1. L

    What song do you relate your CF fight to

    that is an awesome song and one of the best replies I have seen :)
  2. L

    how many times do you take pulmozyme

    ok so recently my doctors have told me pulmozyme is now once a day after 20 years.....What changed? is anyone else dealing with this?
  3. L

    how many times do you take pulmozyme

    ok so recently my doctors have told me pulmozyme is now once a day after 20 years.....What changed? is anyone else dealing with this?
  4. L

    How many PICCs before Port?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Some people do have tricky veins, but the majority of the time when you hear "your veins roll, wiggle, hide" etc., it just means they have...
  5. L

    How many PICCs before Port?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Some people do have tricky veins, but the majority of the time when you hear "your veins roll, wiggle, hide" etc., it just means they have...
  6. L

    How many PICCs before Port?

    I had a little bit of trouble getting PICCS in the childrens hospital but when I transitioned I have not had a single problem
  7. L

    How many PICCs before Port?

    I had a little bit of trouble getting PICCS in the childrens hospital but when I transitioned I have not had a single problem
  8. L

    How many PICCs before Port?

    I have had 26 PICCS and still holding strong no port for me
  9. L

    How many PICCs before Port?

    I have had 26 PICCS and still holding strong no port for me
  10. L

    sleep during ivs

    I always sleep better at home but I have no problem sleeping during my time in the hospital
  11. L

    sleep during ivs

    I always sleep better at home but I have no problem sleeping during my time in the hospital
  12. L

    Sterilizing nebs

    I to boil my parts but I have found only certain nebs can be boiled I have melted a few but the pari's work just fine for this method
  13. L

    Sterilizing nebs

    I to boil my parts but I have found only certain nebs can be boiled I have melted a few but the pari's work just fine for this method
  14. L

    What song do you relate your CF fight to

    recently I have found a good song by a group called "the art of dieing" and the song is called "if I can get thru this" its definitely note worthy
  15. L

    ANYONE ON FACEBOOK THAT HAS CF

    there is actually a large number of people with cf on FB I know of a few myself from various ages
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