Cystic Fibrosis Forum (EXP)

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Recent content by Mairi

  1. M

    First Time Here...

    Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...
  2. M

    First Time Here...

    Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...
  3. M

    First Time Here...

    Hi Tara, My name is Mary and I have two sons. One age 5 wocf and a 2 yo wcf. Our son also has the N1303k mutation and another pretty uncommon one which I can't remember at the moment. He also has more problems with digestion than his lungs and is also on a high enzyme dose. At the moment...
  4. M

    Need some positive thoughts

    Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...
  5. M

    Need some positive thoughts

    Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...
  6. M

    Need some positive thoughts

    Hi Kathryn, I remember these feelings, still have the odd moment even now and my son is 2. He was diagnosed at birth and went through 3 operations before he really turned the corner. Now the positive stuff. He is the happiest, cheekiest, funniest child. He keeps amazingly well and has never...
  7. M

    New mom with 5 month old daughter w/cf

    Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...
  8. M

    New mom with 5 month old daughter w/cf

    Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...
  9. M

    New mom with 5 month old daughter w/cf

    Hi, Our son, who has just turned 2 was also born with an obstructed bowel. He had surgery at a day old, an ileostomy for 4 months and then 2 more surgeries. Since he was 4 months old, he has kept really well. He has never had a chest infection, never needed hospitalised (other than his...
  10. M

    Getting reaquainted

    Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...
  11. M

    Getting reaquainted

    Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...
  12. M

    Getting reaquainted

    Hi I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first...
  13. M

    Gene mutations

    Hi Just wondering if anyone else has either of the gene mutations N1303K or 621+1G>T. My son, 19 months has these mutations and I'm just curious. Mary
  14. M

    ? for parents of CF babies

    I definately sterilised bottles for the first 12 months for both my sons (1 wcf - 19 months and 1 wocf - 4 yrs). After six months I didn't sterilise dummies (pacifiers, I believe they're called over with you), bowls, spoons, etc just washed them in hot soapy water. I used the AVENT microwave...
  15. M

    Last concert u were at

    Went to see Rod Stewart in Glasgow last July. He was amazing. Going to see the Rolling Stones in August. My sister and I are getting into an annual concert trip with our mum to go and see some of the oldies with her! Mary
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