Recent content by Marshyl

I don't know about Tobramycin, although I do take it, but I've had muscle twitches since I was a teenager. Doctors I've spoken to have always chalked it up to taking Albuterol 2-3 times a day for a lifetime. Are you talking about seizures or twitches? There's a big difference between the two.

I couldn't tell you about the blood, but the rest sounds like GERD, which is common with CFers. Has he talked to his doctor about that?

I know most people are looking at Kalydeco as a medicine to increase FEV1, but to me that's only half the battle. I've seen a couple topics here concerning sputum cultures, and how Kalydeco can help eliminate the colonies of bacteria that grow in our lungs. That would be the big thing for me...

I spent about 3 weeks in Tucson, Arizona a couple years ago during the summer visiting my uncle. I live in the Dallas- Fort Worth metroplex. In my opinion, the dry air actually did me some good as I felt better and rarely coughed. I didn't have my vest with me, which might have made another big...

I'm not sure about Narcolepsy, but my doctor who specializes in both CF and sleep disordered breathing told me that up to 25% of people with CF also have sleep apnea, of which I was recently diagnosed. It couldn't hurt to bring it up next time you see your doctor.

I'm not sure about Narcolepsy, but my doctor who specializes in both CF and sleep disordered breathing told me that up to 25% of people with CF also have sleep apnea, of which I was recently diagnosed. It couldn't hurt to bring it up next time you see your doctor.