Cystic Fibrosis Forum (EXP)

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Recent content by RitaLSonnenberg

  1. R

    NEED HELP - Inhaled Amikacin - Mycobacterium

    I dont know if you have tried Cayston yet. I nebulize Cayston every other month, alternating with the TOBI. I have found it helpful. My PFTs suck and baseline is around mid 50s now. I would try anything to get my PFTs up to the 60s again... that would be awesome... Cant remember last time i...
  2. R

    C is for cancer

    I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...
  3. R

    C is for cancer

    I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...
  4. R

    C is for cancer

    I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...
  5. R

    Thyroid problems anyone?

    I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?
  6. R

    Thyroid problems anyone?

    I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?
  7. R

    Thyroid problems anyone?

    I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?
  8. R

    HP placard

    I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...
  9. R

    HP placard

    I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...
  10. R

    HP placard

    I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...
  11. R

    How open are you about CF?

    When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...
  12. R

    How open are you about CF?

    When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...
  13. R

    How open are you about CF?

    When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...
  14. R

    The Humidity

    This has been an awful summer!!!!! I cannot breathe in outside most of the time. Luckily I work in air conditioning and have air conditioning in our house. This past weekend was especially bad with heat index of way over 100. I am so ready for fall it is not funny. I am glad to know that it...
  15. R

    The Humidity

    This has been an awful summer!!!!! I cannot breathe in outside most of the time. Luckily I work in air conditioning and have air conditioning in our house. This past weekend was especially bad with heat index of way over 100. I am so ready for fall it is not funny. I am glad to know that it...
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