Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by summer732

  1. S

    Random questions about transplant

    Hi! Welcome to the journey of transplant! I remember that feeling of all of the questions swirling in your mind like it was yesterday. I talked to enough people on this site that after 4 months of asking questions, I literally didn't have any more questions to ask. So keep asking those...
  2. S

    post transplant

    Hi! I'm going to give you some quick answers to your questions. My life has changed is such a dramatic way that it is so hard to hit on everything. after transplant, what are some things that you can do that you couldn't do before? I couldn't walk up a flight of stairs before transplant...
  3. S

    post transplant

    Hi! I'm going to give you some quick answers to your questions. My life has changed is such a dramatic way that it is so hard to hit on everything. after transplant, what are some things that you can do that you couldn't do before? I couldn't walk up a flight of stairs before transplant...
  4. S

    post transplant lifestyle

    I have tendency to get some mucous plugs sometimes, so I would say I do Albuterol and Hypertonic saline maybe a maximum of 3 x a week. And that is only if I feel like I need just a little extra moisture to lubricate my airways. I don't eat raw fish or meat either. I do eat sushi as long as...
  5. S

    post transplant lifestyle

    I have tendency to get some mucous plugs sometimes, so I would say I do Albuterol and Hypertonic saline maybe a maximum of 3 x a week. And that is only if I feel like I need just a little extra moisture to lubricate my airways. I don't eat raw fish or meat either. I do eat sushi as long as...
  6. S

    Please help me (husband needs transplant)

    Hi, If you want to send me a PM and I will give you my e-mail address. That way, your husband can feel free to ask any questions that come to mind and I can answer them for him (according to my experiences). I'm 7 years out of my transplant so I can shed some light on the process for you...
  7. S

    Please help me (husband needs transplant)

    Hi, If you want to send me a PM and I will give you my e-mail address. That way, your husband can feel free to ask any questions that come to mind and I can answer them for him (according to my experiences). I'm 7 years out of my transplant so I can shed some light on the process for you...
  8. S

    How to make g-button less noticeable...

    Maybe I can shed some light on the "sucking in thing". I had a feeding tube for 8 years (but haven't had one in for 7!). I can distinctly remember when I was hungry my stomach would pull the feeding tube in. Think about when you are hungry enough that you get hunger pains. If you notice your...
  9. S

    How to make g-button less noticeable...

    Maybe I can shed some light on the "sucking in thing". I had a feeding tube for 8 years (but haven't had one in for 7!). I can distinctly remember when I was hungry my stomach would pull the feeding tube in. Think about when you are hungry enough that you get hunger pains. If you notice your...
  10. S

    My teeth are gross...

    My teeth were also just like you all described, especially my front teeth. Yellowish, worn out enamel, etc. I ended up getting porcelain veneers on my six front teeth. What a difference. If you can afford to have this done, I would say go for it. But as David said, any sort of capping...
  11. S

    My teeth are gross...

    My teeth were also just like you all described, especially my front teeth. Yellowish, worn out enamel, etc. I ended up getting porcelain veneers on my six front teeth. What a difference. If you can afford to have this done, I would say go for it. But as David said, any sort of capping...
  12. S

    Transplant Anniversary

    I forget the liters but it was 110% of predicted. I'm going back to the doctor in January so I will post my PFTs if that helps. I know a couple of people have been asking that. My center actually gives a print out at every visit of my historical numbers. So I know what my PFTs were right...
  13. S

    Transplant Anniversary

    I forget the liters but it was 110% of predicted. I'm going back to the doctor in January so I will post my PFTs if that helps. I know a couple of people have been asking that. My center actually gives a print out at every visit of my historical numbers. So I know what my PFTs were right...
  14. S

    Transplant Anniversary

    Congrats on two years Leah!! Every year is such a huge milestone. Hope you are feeling well and enjoying your special day.
  15. S

    Transplant Anniversary

    Congrats on two years Leah!! Every year is such a huge milestone. Hope you are feeling well and enjoying your special day.
Top