Recent content by terber

Can you believe that after already having chicken pox at the age of 5, I got it again!?? It's driving me insane! I went to the ER tonight after finding a few bumps on my arm and belly etc...and the doc told me...I have a regualr check up tomorrow at the CF clinic but, I couldnt wait that long...

I was on Zithromax 500mg 3 times a week (mon, wed, fri) and I did see a reduction in the number of lung infections (mostly pneumonia) I got per year. Unfortunately, I stopped taking it because I was in and out of the restroom all day!! Sorry, had to say it..heh

I was diagnosed the day before my 14th b-day. I had been getting a lot of stomach aches and I was coughing up blood...The family Dr. I was seeing said I was doing it all for attention...I dont know how anyone can cough up blood for attention but, anyhow, I finally went to the ER and the doc...

Does anyone know of any other CF scholarship programs besides the Creon Family Scholarship, Boomer Esiason (I hope I spelled that correctly) scholarship or "CFSF"?

I just thought of another rude person I encountered...This rude person (of all people) was a geometry teacher I had back in high school...I had kept coughing in class one day and the teacher told me "please dont die in class...Id hate to have to sign all of the papers.." My friend told him "she...

I just signed up last night and I tried chatting but, I was the only one in there...Maybe because it was like 3 am..heh

Ive only seen one show on tv that had something about cf on it...It actually was a special about young girls doing pageants and one of the older girls (13 yrs old) had cf...They didnt immediately come out and say she had it but, they showed her coughing and as soon as I heard her cough, I knew...

I have LOTS of stories (I could type for days) about people being rude but, one story in particular sticks out in my mind the most. I was shopping with my sis and I had parked in the handicap spot. As I was getting out of the car, some lady yelled "how can you go in and shop with a clear...

Although getting PICCs can sometimes suck, I also would much rather have it than get a port. I already have a G-Tube and I would like to try and have as little plastic sticking out of my body as possible. The G-Tube already makes me self-conscious enough and a port wouldnt make it any...

Pneumonia is my main problem with CF...I get it on an average of 2-4 times a year!!! Although, Ive never experienced the "cold breathe thing" I always know when I have pneumonia when I lose my appetite.I hate it!!! I also sleep a lot more, my coughing and shortness of breathe increases and I get...

I have coughed up blood in massive amounts quite a few times. One of the first times it happened was during a "clean out" actually...I was very worried and immediately called in the nurse. They didn't know why it was happening...So, the next day I asked the doc and he explained that maybe during...