Search results

For the record I hold a doctorate in genetics. Granted genetics parallels the exponential leaps of space science. I was 6 when Sputnik orbited our terrified country. We had the sub orbital Redstone rocket thanks to Werner Von Braun and what he recruited from the Nazi rocket team. I received my...

Quick addendum, Hatha Yoga was written by Yogi Ramcharaka. Although bio-feedback basics can fit in a 10 page pamphlet, Hatha Yoga, assuming I have the correct title, is proprobably 160 pages. If stress is a significant issue for you, it might be worth finding the book

I just spent twothumbing for an hour and lost it. Maybe I can shorten this. It appears I wrote a lot of stuff you already know. Dr. Freedman is the American authority on idiopathic pancreatic issues. He is very informed and gladly shares information. I walked out after several consults over...

I realize your main issue is preventing or reducing pancreatic attacks. My case is hopeless at this. Not for lack of trying, however. I have tried biofeedback, nerve blocks, PICC lines for GI "vacations", diet this and diet that, magnetic wave brain stimulation ad infinatum. My only real...

Jsjohnson77: If it was your doctor who told you that your next child has a 50% chance of being born with CF, read the first post and my last post. It would be good even now to see a genetic counselor. To wade a little where I shouldn't, the classic genetic trait CF represents is Mendelian or...

I read and searched Rheamc's post (on my DROID) and totally didn't see the joke. We all typo but some are funny.

You could be my twin, excepting the mutations. My CF dx came after my third acute pancreatic attack didn't go away. I was 52 while I laid writhing with pain when my wife found a pancreatic center in Boston. And so we went to Boston. After discovering my pancreatic function test was a North...

Sorry, I need to stop posting from my phone. I can't properly review my own posts. I was about two when my parents thought vitamins might help me. If there was any benefit, on average I got 4 times as much daily vitamin that was in my food. With about a month of mother's milk I went to formula...

To address your worry about potential damage two years w/o a CF dx. I was 52 when I was diagnosed. Although I have all the typical CF problems, malnutrition has taken its toll. Mostly I have arthritis and osteoporosis along with crappy teeth. Being born in 1950, medicine was worshipping the Pill...

Your basic understanding of genetics has paid off in spades. I recommend you continue reading this section of posts. As Printer noted, there are many older CFers. It is a great place to have a vicarious experience of CFers' lives. You would be surprised at how special and rich most of our lives'...

Dang, I am not feeling that great at the moment but please pardon my mixed and incomplet grammar.

The concept that a hospitals are bug incubator is a little old. Today nearly all hospitals are engineered from the wall paint to the plastic on the call button are antimicrobial. Air conditioning should be cleansing the incomming air in rooms where it is important. From your post concerning...

I am not a parent. My diagnosis was at 53 in 2003. The two paths, one of early diagnosis and no diagnosis or very late diagnosis have take aways, both involving CF diagnosis. Not knowing how sick I really am allowed me to live without a label saying I am sick. Of course I was sick and rode the...

Man, I can't get this straight. If. Sweat test is very high or catagoricaly confirmed as positive for CF. A genetic counselor should be brought in at that time. Genetic tests are simple to read but everything from if genetic analysis should follow a sweat test, to explaining the test in adequate...

Conversely it is frustrating at a CF facility when CF docs are mostly pulmonologists. I have a doctorate in genetics and was 53 when genetically tested. I was fine w/o a genetic counselor. Doctors who don't insist your child, and you have genetic analysis for a disease like CF explained to your...

I enjoy this forum. Admittedly, this horrid disease raises the bar and blood pressure fast. Printer commands your attention and seldom is he is generally 'to the point' and correct. Being accused of child abuse is a siren of sorts. A mother accused of child abuse is tantamount to an Uncle bein...

I imagine you will see your daughter's CF doc again, if for no other reason than to close out and take her records. On the one hand it is heartening to see a. CF doc not bowing before genetics. From your post, I wondered if you or possibly the doctor are communicating, genetically speaking. This...

I quoted from an old John Prine song "Dear Abbey" in what has resulted in way too many posts, a record for me. "You're looking for bad luck and knocken on wood". Translation; your posts had a lot of bad things that could happen, or might be in the future. Just why is the unknown causing you to...

I missed your direct question and considering I missed several words that would have made complete sentences and reading what you clipped. Yeah it is confusing and I am sorry. I wrote another to try and address your clarification concerns. You are friends, and CFers and family of CFers...

It is so painful to watch and wonder why and how to deal with a loved one potentially followed around by suffering and death. "From the instant of our birth there are patterns...." If you want a dose, read the posts in this forum labelled "Reeling". What is worse, dying young or dying slowly? In...