Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    Genes DF508+384910 kb

    hey emer i'm jaime, 23 f from NC and i have the same mutations as you! and you too brea! I'm a little different b/c i'm PI and was diagnosed at birth (failure to thrive). currently my lung function at my best is between ~58%-60%. i culture PA and a couple kinds of staph, not MRSA...
  2. J

    Genes DF508+384910 kb

    hey emer i'm jaime, 23 f from NC and i have the same mutations as you! and you too brea! I'm a little different b/c i'm PI and was diagnosed at birth (failure to thrive). currently my lung function at my best is between ~58%-60%. i culture PA and a couple kinds of staph, not MRSA...
  3. J

    Genes DF508+384910 kb

    hey emer i'm jaime, 23 f from NC and i have the same mutations as you! and you too brea! I'm a little different b/c i'm PI and was diagnosed at birth (failure to thrive). currently my lung function at my best is between ~58%-60%. i culture PA and a couple kinds of staph, not MRSA...
  4. J

    Genes DF508+384910 kb

    hey emer i'm jaime, 23 f from NC and i have the same mutations as you! and you too brea! I'm a little different b/c i'm PI and was diagnosed at birth (failure to thrive). currently my lung function at my best is between ~58%-60%. i culture PA and a couple kinds of staph, not MRSA...
  5. J

    Genes DF508+384910 kb

    hey emer i'm jaime, 23 f from NC and i have the same mutations as you! and you too brea! <br /> <br />I'm a little different b/c i'm PI and was diagnosed at birth (failure to thrive). currently my lung function at my best is between ~58%-60%. i culture PA and a couple kinds of staph, not MRSA...
  6. J

    Trip?

    i'm the same as flessner89....went on school trips but i just had to take along my mom (super cool i know) because i didn't have the vest when i was in 8th grade back in the day. i think you should definitely go! thats why the vest is SO awesome because it allows you to be independent and do...
  7. J

    Trip?

    i'm the same as flessner89....went on school trips but i just had to take along my mom (super cool i know) because i didn't have the vest when i was in 8th grade back in the day. i think you should definitely go! thats why the vest is SO awesome because it allows you to be independent and do...
  8. J

    Trip?

    i'm the same as flessner89....went on school trips but i just had to take along my mom (super cool i know) because i didn't have the vest when i was in 8th grade back in the day. i think you should definitely go! thats why the vest is SO awesome because it allows you to be independent and do...
  9. J

    Trip?

    i'm the same as flessner89....went on school trips but i just had to take along my mom (super cool i know) because i didn't have the vest when i was in 8th grade back in the day. i think you should definitely go! thats why the vest is SO awesome because it allows you to be independent and do...
  10. J

    Trip?

    i'm the same as flessner89....went on school trips but i just had to take along my mom (super cool i know) because i didn't have the vest when i was in 8th grade back in the day. i think you should definitely go! thats why the vest is SO awesome because it allows you to be independent and do...
  11. J

    CF Clinic

    the frequency of my visits depends on my health at the time....but the longest i ever go is every 3 months...but i have heard of every 2 being normal
  12. J

    CF Clinic

    the frequency of my visits depends on my health at the time....but the longest i ever go is every 3 months...but i have heard of every 2 being normal
  13. J

    CF Clinic

    the frequency of my visits depends on my health at the time....but the longest i ever go is every 3 months...but i have heard of every 2 being normal
  14. J

    CF Clinic

    the frequency of my visits depends on my health at the time....but the longest i ever go is every 3 months...but i have heard of every 2 being normal
  15. J

    CF Clinic

    the frequency of my visits depends on my health at the time....but the longest i ever go is every 3 months...but i have heard of every 2 being normal
  16. J

    Colistin vs. Tobi

    i had major problems with colistin--namely it made me worse instead of better with shortness of breath, horrible coughing, decreased fev1 etc. i really wanted to do it instead of Tobi b/c i hate tobi but sadly that did not work out. have you tried getting the tobramycin for the eflow? thats...
  17. J

    Colistin vs. Tobi

    i had major problems with colistin--namely it made me worse instead of better with shortness of breath, horrible coughing, decreased fev1 etc. i really wanted to do it instead of Tobi b/c i hate tobi but sadly that did not work out. have you tried getting the tobramycin for the eflow? thats...
  18. J

    Colistin vs. Tobi

    i had major problems with colistin--namely it made me worse instead of better with shortness of breath, horrible coughing, decreased fev1 etc. i really wanted to do it instead of Tobi b/c i hate tobi but sadly that did not work out. have you tried getting the tobramycin for the eflow? thats...
  19. J

    Colistin vs. Tobi

    i had major problems with colistin--namely it made me worse instead of better with shortness of breath, horrible coughing, decreased fev1 etc. i really wanted to do it instead of Tobi b/c i hate tobi but sadly that did not work out. have you tried getting the tobramycin for the eflow? thats...
  20. J

    Colistin vs. Tobi

    i had major problems with colistin--namely it made me worse instead of better with shortness of breath, horrible coughing, decreased fev1 etc. <br />i really wanted to do it instead of Tobi b/c i hate tobi but sadly that did not work out. <br /> <br />have you tried getting the tobramycin for...
Top