Cystic Fibrosis Forum (EXP)

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  1. P

    Sweat Test Required?

    A single (D F508) mutation would only prove that the child is a CF carrier. A sweat test would go a long way in determining if the child has CF. I would be interested in how many mutations your child was screened for when they found the D F508. There are almost 1900 know mutations, any one...
  2. P

    Sweat Test Required?

    A single (D F508) mutation would only prove that the child is a CF carrier. A sweat test would go a long way in determining if the child has CF. I would be interested in how many mutations your child was screened for when they found the D F508. There are almost 1900 know mutations, any one...
  3. P

    Sweat Test Required?

    A single (D F508) mutation would only prove that the child is a CF carrier. A sweat test would go a long way in determining if the child has CF. I would be interested in how many mutations your child was screened for when they found the D F508. There are almost 1900 know mutations, any one...
  4. P

    How long before eating should one take enzymes?

    Gnome: I may have been hasty with my earlier reply. I am now completly pancrease insufficent and my reply was based on my current state. Earlier, in my life, when I had some pancreatic involvement, I had alot of leway in my digesting of my food. I could even skip a meal. I would suggest...
  5. P

    How long before eating should one take enzymes?

    Gnome: I may have been hasty with my earlier reply. I am now completly pancrease insufficent and my reply was based on my current state. Earlier, in my life, when I had some pancreatic involvement, I had alot of leway in my digesting of my food. I could even skip a meal. I would suggest...
  6. P

    How long before eating should one take enzymes?

    Gnome: I may have been hasty with my earlier reply. I am now completly pancrease insufficent and my reply was based on my current state. Earlier, in my life, when I had some pancreatic involvement, I had alot of leway in my digesting of my food. I could even skip a meal. I would suggest...
  7. P

    Just curious

    Once again, Harriett does the work (research) for the rest of us. Thanks, Harriett. Bill
  8. P

    Just curious

    Once again, Harriett does the work (research) for the rest of us. Thanks, Harriett. Bill
  9. P

    Just curious

    Once again, Harriett does the work (research) for the rest of us. Thanks, Harriett. Bill
  10. P

    Mom of 2 daughters wants to connect...

    I was dx in 1987 and the CF medical knowledge has grown be leaps and bounds since then. Both girls should be given a FULL CF GENE SEQUENCING. This MUST be done at an approved CF Center. Good luck, Bill
  11. P

    Mom of 2 daughters wants to connect...

    I was dx in 1987 and the CF medical knowledge has grown be leaps and bounds since then. Both girls should be given a FULL CF GENE SEQUENCING. This MUST be done at an approved CF Center. Good luck, Bill
  12. P

    Mom of 2 daughters wants to connect...

    I was dx in 1987 and the CF medical knowledge has grown be leaps and bounds since then. Both girls should be given a FULL CF GENE SEQUENCING. This MUST be done at an approved CF Center. Good luck, Bill
  13. P

    I'm 32 today!

    HAPPY BIRTHDAY!!!
  14. P

    I'm 32 today!

    HAPPY BIRTHDAY!!!
  15. P

    I'm 32 today!

    HAPPY BIRTHDAY!!!
  16. P

    How long before eating should one take enzymes?

    Enzymes need to be taken at FIRST BITE. No options. Bill
  17. P

    How long before eating should one take enzymes?

    Enzymes need to be taken at FIRST BITE. No options. Bill
  18. P

    How long before eating should one take enzymes?

    Enzymes need to be taken at FIRST BITE. No options. Bill
  19. P

    working to correct Delta F508

    Yancee: I hope, that LONG BEFORE you are 71, that there is a cure for CF and that your wife and children don't lose you before you become crazy. Love Bill
  20. P

    working to correct Delta F508

    Yancee: I hope, that LONG BEFORE you are 71, that there is a cure for CF and that your wife and children don't lose you before you become crazy. Love Bill
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