Cystic Fibrosis Forum (EXP)

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  1. P

    7% saline

    Liz: <br /> <br />7% works great for me, i take it as i vest. Im alergic to Toby and Pulmizime so it is great for me. <br /> <br />Bill
  2. P

    Patiently Waiting for a Call

    GOD BLESS YOU JOHN. Heather is lucky to have you in her life.
  3. P

    Patiently Waiting for a Call

    GOD BLESS YOU JOHN. Heather is lucky to have you in her life.
  4. P

    Patiently Waiting for a Call

    GOD BLESS YOU JOHN. Heather is lucky to have you in her life.
  5. P

    7% saline

    Hi: We need a prescription. I get mine through the Cystic Fibrosis Foundation Drug Store. I would suggest that you contact CFF. Bill
  6. P

    7% saline

    Hi: We need a prescription. I get mine through the Cystic Fibrosis Foundation Drug Store. I would suggest that you contact CFF. Bill
  7. P

    7% saline

    Hi: <br /> <br />We need a prescription. I get mine through the Cystic Fibrosis Foundation Drug Store. I would suggest that you contact CFF. <br /> <br />Bill
  8. P

    My soon-to-be step-child has CF

    Hi Sunny: First CF is not one disease, it depends on the combination of the 2 genes that she has inherited. You need to consult with her CF Clinic. My lung function is pretty good (75%) but i cant eat a cherry without an enzyme. Others will have a lung function in the 40% but can eat...
  9. P

    My soon-to-be step-child has CF

    Hi Sunny: First CF is not one disease, it depends on the combination of the 2 genes that she has inherited. You need to consult with her CF Clinic. My lung function is pretty good (75%) but i cant eat a cherry without an enzyme. Others will have a lung function in the 40% but can eat...
  10. P

    My soon-to-be step-child has CF

    Hi Sunny: <br /> <br />First CF is not one disease, it depends on the combination of the 2 genes that she has inherited. You need to consult with her CF Clinic. My lung function is pretty good (75%) but i cant eat a cherry without an enzyme. Others will have a lung function in the 40% but can...
  11. P

    CF Telethon

    GOD bless you.
  12. P

    CF Telethon

    GOD bless you.
  13. P

    CF Telethon

    GOD bless you.
  14. P

    WHAT WOULD YOU DO~help!

    WOW!!! This is very simple. If you truly believe that she will get better without any treatment, (and that you know more about CF than your Docror does) by all means keep her at home. If you believe that she has a serious, life threatening disease that you are unable to treat, listen to...
  15. P

    WHAT WOULD YOU DO~help!

    WOW!!! This is very simple. If you truly believe that she will get better without any treatment, (and that you know more about CF than your Docror does) by all means keep her at home. If you believe that she has a serious, life threatening disease that you are unable to treat, listen to...
  16. P

    WHAT WOULD YOU DO~help!

    WOW!!! This is very simple. If you truly believe that she will get better without any treatment, (and that you know more about CF than your Docror does) by all means keep her at home. If you believe that she has a serious, life threatening disease that you are unable to treat, listen to...
  17. P

    Culturing MAC

    When I was first dx I cultured MAC and have been treated two times for it since then. I was sent to the Infectious Disease Department (on two separate occasions) at Massachusetts General Hospital. On both visits the Doctor recommended that we leave the MAC alone. If its not bothering me, lets...
  18. P

    Culturing MAC

    When I was first dx I cultured MAC and have been treated two times for it since then. I was sent to the Infectious Disease Department (on two separate occasions) at Massachusetts General Hospital. On both visits the Doctor recommended that we leave the MAC alone. If its not bothering me, lets...
  19. P

    Culturing MAC

    When I was first dx I cultured MAC and have been treated two times for it since then. I was sent to the Infectious Disease Department (on two separate occasions) at Massachusetts General Hospital. On both visits the Doctor recommended that we leave the MAC alone. If its not bothering me, lets...
  20. P

    New Hospital = dissapointment

    At my age it is much easier to get results to problems but if you remain respectful, you should get results. I would ask for the ADMINISTRATIVE NURSE (title may vary) and tell her exactly what you whav written here. I would also email the Doctor at the CF Center, sending the same information...
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