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OK. First don't let this dx overwelm you. I'm male 71 years of age with CF. We just celebrated our 48 Wedding Anniversary.
I to have Delta F508 and an unknown defective gene.
I would STRONGLY recommend that you bring your son to a nearby CF Center, if you are not doing that already...
OK. First don't let this dx overwelm you. I'm male 71 years of age with CF. We just celebrated our 48 Wedding Anniversary.
<br />
<br />I to have Delta F508 and an unknown defective gene.
<br />
<br />I would STRONGLY recommend that you bring your son to a nearby CF Center, if you are not...
There is a Gastro/CF Researcher at Beth Israel Deaconess Medical Center in Boston. He is the Dr that first connected Pancreatitis with CF.
His name is Steve Freedman. I would suggest that you Google him.
The phone # at BIDMC is 617-667-7000.
There is a Gastro/CF Researcher at Beth Israel Deaconess Medical Center in Boston. He is the Dr that first connected Pancreatitis with CF.
His name is Steve Freedman. I would suggest that you Google him.
The phone # at BIDMC is 617-667-7000.
There is a Gastro/CF Researcher at Beth Israel Deaconess Medical Center in Boston. He is the Dr that first connected Pancreatitis with CF.
<br />
<br />His name is Steve Freedman. I would suggest that you Google him.
<br />
<br />The phone # at BIDMC is 617-667-7000.
The Cystic Fibrosis Foundation has a Attorney on staff to advise on situations like this. Give her a call and get some free advice before proceeding.
Bill
The Cystic Fibrosis Foundation has a Attorney on staff to advise on situations like this. Give her a call and get some free advice before proceeding.
Bill
The Cystic Fibrosis Foundation has a Attorney on staff to advise on situations like this. Give her a call and get some free advice before proceeding.
<br />
<br />Bill
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