Cystic Fibrosis Forum (EXP)

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  1. P

    Get Genitic Tests!

    GI bleeding is definatly a CF symptom. Go to a CF Center for a dx,
  2. P

    Get Genitic Tests!

    GI bleeding is definatly a CF symptom. Go to a CF Center for a dx,
  3. P

    Get Genitic Tests!

    GI bleeding is definatly a CF symptom. Go to a CF Center for a dx,
  4. P

    how long doyou wait for a return call/email from doctor?

    Hi: I have found that Doctors are just too busy to return every call/email. In my experience it is better to call/email the Doctors NP or Nurse and let them do the leg work for you. It is in your best interest to create a "friendship" with the Nurse or NP. I never wait more than 24 hours for...
  5. P

    how long doyou wait for a return call/email from doctor?

    Hi: I have found that Doctors are just too busy to return every call/email. In my experience it is better to call/email the Doctors NP or Nurse and let them do the leg work for you. It is in your best interest to create a "friendship" with the Nurse or NP. I never wait more than 24 hours for...
  6. P

    how long doyou wait for a return call/email from doctor?

    Hi: <br /> <br />I have found that Doctors are just too busy to return every call/email. In my experience it is better to call/email the Doctors NP or Nurse and let them do the leg work for you. It is in your best interest to create a "friendship" with the Nurse or NP. <br /> <br />I never...
  7. P

    Any Info on F508del/L732X

    Hi: I'm male 70 years of age with CF. I understand that your son's dx seems like a death sentence but it is not. I was a lifeguard on an Atlantic Ocean beach for five years and I played basketball in college (poorly but I played. A cure is, in my opinion, very close and definatly in your...
  8. P

    Any Info on F508del/L732X

    Hi: I'm male 70 years of age with CF. I understand that your son's dx seems like a death sentence but it is not. I was a lifeguard on an Atlantic Ocean beach for five years and I played basketball in college (poorly but I played. A cure is, in my opinion, very close and definatly in your...
  9. P

    Any Info on F508del/L732X

    Hi: <br /> <br />I'm male 70 years of age with CF. I understand that your son's dx seems like a death sentence but it is not. <br /> <br />I was a lifeguard on an Atlantic Ocean beach for five years and I played basketball in college (poorly but I played. <br /> <br />A cure is, in my opinion...
  10. P

    Been told to use Cf Services Pharmacy

    Under "Obamnacare" your daughter can stay on your insurance until she reaches 26 years of age.
  11. P

    Been told to use Cf Services Pharmacy

    Under "Obamnacare" your daughter can stay on your insurance until she reaches 26 years of age.
  12. P

    Been told to use Cf Services Pharmacy

    Under "Obamnacare" your daughter can stay on your insurance until she reaches 26 years of age.
  13. P

    Been told to use Cf Services Pharmacy

    I began using the CF Pharmacy three months ago. I think that they are excellent.
  14. P

    Been told to use Cf Services Pharmacy

    I began using the CF Pharmacy three months ago. I think that they are excellent.
  15. P

    Been told to use Cf Services Pharmacy

    I began using the CF Pharmacy three months ago. I think that they are excellent.
  16. P

    Dental problems caused by cf?

    Acid Reflux can have an serious effect upon your teeth. If you are having this advise ur CF Doctor and your Dentist.
  17. P

    Dental problems caused by cf?

    Acid Reflux can have an serious effect upon your teeth. If you are having this advise ur CF Doctor and your Dentist.
  18. P

    Dental problems caused by cf?

    Acid Reflux can have an serious effect upon your teeth. If you are having this advise ur CF Doctor and your Dentist.
  19. P

    I'm trying REALLY hard to not let CF get me down

    Hi: I'm male 70 years old with CF. I started college in September of 1960 and received my BS in September 1977. My lung function is 73% and along with CF I also have MAC. I know what hospital time is all about. Thursday was my 48th wedding anniversary. In short, you will do well to prepare...
  20. P

    I'm trying REALLY hard to not let CF get me down

    Hi: I'm male 70 years old with CF. I started college in September of 1960 and received my BS in September 1977. My lung function is 73% and along with CF I also have MAC. I know what hospital time is all about. Thursday was my 48th wedding anniversary. In short, you will do well to prepare...
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