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My daughter is 2 and we only do CPT once a day for about five minutes. I try to do all sides but she is really fighting the front and under her arms so I do both sides of her back. I sometimes will do it twice but that is rare. I am seeing others on her doing three or four times a day and am...

Hi All, I am passing on that I found a great drink for my daugher. It is made by All Bran and is a pink lemonade drink mix you pour into water. It has 10 grams of fiber and has really helped my daughter with her bowel movements. I found it in the pharmacy isle next to all fiber supplements in...

Hi All, First let me say I am so happy I found this board. I have learned so much about how families are dealing with CF. My daughter is 2 and currently only takes vitamins, enzymes, and we do manual chest pt almost daily. At this point she has not cultured anything other than staph. When...

Hi All, My neighbor has a big trampoline with all the safety features and my 2yr old daughter LOVES it. I find her cough is juicier after she bounces on it for a while and I am assuming it is helping to shake things up in her lungs. Anyone else have experience with this? I would like to buy a...

I know these are the harmful bacteria that are hard to get rid of. Where do you find them and how can I help my daughter avoid them? Thanks, Karen

What is your protocol? HOw often do you do it and for how long? How old is your child? Here is my situation. My daughter is 2 and we do manual pt at least five times a week. I try for seven days a week but that doesn't always work. She will only me do her back so I have to get under her...

Hi All, I posted this on the pg board too. My daughter is 2 w/cf (dd508) and we want at least one more child. We are considering IVF/PGD but I am curious what people's experiences are with it. All stories are greatly appreciated. Thanks!

Hi All, My daughter is 2 w/cf (dd508) and we want at least one more child. We are considering IVF/PGD but I am curious what people's experiences are with it. All stories are greatly appreciated. Thanks!

My daughter is two with cf. She has not yet done any of the tests for her lungs because she is too little but I hear about them all the time. Can someone explain what these are and what the abbreviation stands for? FEV1 FEV2 PFT Any others I forgot? Thank you, Karen

Hi All, This is my first post and I am hoping to get your thoughts. My daughter will be 2 next month and we are considering pre-school for her in the fall. We are thinking two days a week for a total of 6 hours. I am at home so there is no need for day care but I thought this would be fun for...

Hi All, I am new here but very happy to find this forum. I am wondering if there is anything else I can do to prevent my daughter from picking up the bad bacteria. Twice a week I do the following: vaccum, mop, use clorox wipes on door handles, light switches, remotes computers and other...