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  1. H

    Considering a second child...What did you do?

    <p>My four year old daughter has CF. I have done two IVF/PGD cycles in hopes of having another one without passing on the disease. Both cycles failed. I am curious what others did to have more children? Did you just go for it naturally and what will be will be? Did anyone consider using a sperm...
  2. H

    Pulmozyme Question

    Thanks folks. This is really helpful. I am always stressing about making sure it is done at least and hour to 90 minutes before her PT.
  3. H

    Pulmozyme Question

    Thanks folks. This is really helpful. I am always stressing about making sure it is done at least and hour to 90 minutes before her PT.
  4. H

    Pulmozyme Question

    Thanks folks. This is really helpful. I am always stressing about making sure it is done at least and hour to 90 minutes before her PT.
  5. H

    Pulmozyme Question

    Thanks folks. This is really helpful. I am always stressing about making sure it is done at least and hour to 90 minutes before her PT.
  6. H

    Pulmozyme Question

    Thanks folks. This is really helpful. I am always stressing about making sure it is done at least and hour to 90 minutes before her PT.
  7. H

    Pulmozyme Question

    How long after Pulmozyme do you do chest PT? I thought we were supposed to wait about 90 minutes to let the medicine loosen everything up and then do chest pt. Yesterday at clinic her doc mentioned only waiting about half an hour. Thanks, Karen
  8. H

    Pulmozyme Question

    How long after Pulmozyme do you do chest PT? I thought we were supposed to wait about 90 minutes to let the medicine loosen everything up and then do chest pt. Yesterday at clinic her doc mentioned only waiting about half an hour. Thanks, Karen
  9. H

    Pulmozyme Question

    How long after Pulmozyme do you do chest PT? I thought we were supposed to wait about 90 minutes to let the medicine loosen everything up and then do chest pt. Yesterday at clinic her doc mentioned only waiting about half an hour. Thanks, Karen
  10. H

    Pulmozyme Question

    How long after Pulmozyme do you do chest PT? I thought we were supposed to wait about 90 minutes to let the medicine loosen everything up and then do chest pt. Yesterday at clinic her doc mentioned only waiting about half an hour. Thanks, Karen
  11. H

    Pulmozyme Question

    How long after Pulmozyme do you do chest PT? I thought we were supposed to wait about 90 minutes to let the medicine loosen everything up and then do chest pt. Yesterday at clinic her doc mentioned only waiting about half an hour. <br /> <br />Thanks, <br />Karen
  12. H

    CF centers in Boston

    When our daughter was diagnosed at 9 days old, while in the NICU for premature birth, we contacted Children's and went there for our first appointment. It was horrible. We never even saw a doctor as she just kept us waiting. I was so angry and swore I would never send my daughter there. We...
  13. H

    CF centers in Boston

    When our daughter was diagnosed at 9 days old, while in the NICU for premature birth, we contacted Children's and went there for our first appointment. It was horrible. We never even saw a doctor as she just kept us waiting. I was so angry and swore I would never send my daughter there. We...
  14. H

    CF centers in Boston

    When our daughter was diagnosed at 9 days old, while in the NICU for premature birth, we contacted Children's and went there for our first appointment. It was horrible. We never even saw a doctor as she just kept us waiting. I was so angry and swore I would never send my daughter there. We...
  15. H

    CF centers in Boston

    When our daughter was diagnosed at 9 days old, while in the NICU for premature birth, we contacted Children's and went there for our first appointment. It was horrible. We never even saw a doctor as she just kept us waiting. I was so angry and swore I would never send my daughter there. We...
  16. H

    CF centers in Boston

    When our daughter was diagnosed at 9 days old, while in the NICU for premature birth, we contacted Children's and went there for our first appointment. It was horrible. We never even saw a doctor as she just kept us waiting. I was so angry and swore I would never send my daughter there. We...
  17. H

    Will I always feel resentment??

    Tami, I am so sorry for the loss of your baby. I have been there too and just wanted to tell I am thinking of you. Karen
  18. H

    Will I always feel resentment??

    Tami, I am so sorry for the loss of your baby. I have been there too and just wanted to tell I am thinking of you. Karen
  19. H

    Will I always feel resentment??

    Tami, I am so sorry for the loss of your baby. I have been there too and just wanted to tell I am thinking of you. Karen
  20. H

    Will I always feel resentment??

    Tami, I am so sorry for the loss of your baby. I have been there too and just wanted to tell I am thinking of you. Karen
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