Cystic Fibrosis Forum (EXP)

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  1. H

    Using pulmozyme for the first time in a few minutes...need help.

    Hi All, <br />My two and a half year old is about to start pulmozyme tonight. This is our first experience with nebs and I have never used one before. The guy who dropped off the machine barely gave me an explanation so if you have quick instructions I would appreciate it. I would love any...
  2. H

    For those in clinical trials....

    For those participating in clinical trials....what are you/were you taking and how has it worked for you? I am trying to keep myself updated on what is happening out there in terms of meds and what is in the works. I have heard really great things about Denufosol and VX770.
  3. H

    For those in clinical trials....

    For those participating in clinical trials....what are you/were you taking and how has it worked for you? I am trying to keep myself updated on what is happening out there in terms of meds and what is in the works. I have heard really great things about Denufosol and VX770.
  4. H

    For those in clinical trials....

    For those participating in clinical trials....what are you/were you taking and how has it worked for you? I am trying to keep myself updated on what is happening out there in terms of meds and what is in the works. I have heard really great things about Denufosol and VX770.
  5. H

    For those in clinical trials....

    For those participating in clinical trials....what are you/were you taking and how has it worked for you? I am trying to keep myself updated on what is happening out there in terms of meds and what is in the works. I have heard really great things about Denufosol and VX770.
  6. H

    For those in clinical trials....

    For those participating in clinical trials....what are you/were you taking and how has it worked for you? I am trying to keep myself updated on what is happening out there in terms of meds and what is in the works. I have heard really great things about Denufosol and VX770.
  7. H

    If you live in New England...please read

    If you live in the New England area where do you go for clinic and are you happy with the care?
  8. H

    If you live in New England...please read

    If you live in the New England area where do you go for clinic and are you happy with the care?
  9. H

    If you live in New England...please read

    If you live in the New England area where do you go for clinic and are you happy with the care?
  10. H

    If you live in New England...please read

    If you live in the New England area where do you go for clinic and are you happy with the care?
  11. H

    If you live in New England...please read

    If you live in the New England area where do you go for clinic and are you happy with the care?
  12. H

    Mom's of CF'ers ...come in

    If I were your sister I would find another doctor. I think that doctor is negligent for not testing her husband or the baby. If the baby does have CF he could have a lawsuit on his hands. I agree that your sister would be so much better prepared if she knew ahead of time. Good luck to her...
  13. H

    Mom's of CF'ers ...come in

    If I were your sister I would find another doctor. I think that doctor is negligent for not testing her husband or the baby. If the baby does have CF he could have a lawsuit on his hands. I agree that your sister would be so much better prepared if she knew ahead of time. Good luck to her...
  14. H

    Mom's of CF'ers ...come in

    If I were your sister I would find another doctor. I think that doctor is negligent for not testing her husband or the baby. If the baby does have CF he could have a lawsuit on his hands. I agree that your sister would be so much better prepared if she knew ahead of time. Good luck to her...
  15. H

    Mom's of CF'ers ...come in

    If I were your sister I would find another doctor. I think that doctor is negligent for not testing her husband or the baby. If the baby does have CF he could have a lawsuit on his hands. I agree that your sister would be so much better prepared if she knew ahead of time. Good luck to her...
  16. H

    Mom's of CF'ers ...come in

    If I were your sister I would find another doctor. I think that doctor is negligent for not testing her husband or the baby. If the baby does have CF he could have a lawsuit on his hands. I agree that your sister would be so much better prepared if she knew ahead of time. <br /> <br />Good...
  17. H

    Salt, how much?

    My daughter is now 2 and we do not add salt to her diet because she gets it through her table food. She eats pretzels and salty meats so that should do it. When she was a baby we did the 1/8 of a teaspoon to her formula and sometimes added a little more on the very hot days. Karen
  18. H

    Salt, how much?

    My daughter is now 2 and we do not add salt to her diet because she gets it through her table food. She eats pretzels and salty meats so that should do it. When she was a baby we did the 1/8 of a teaspoon to her formula and sometimes added a little more on the very hot days. Karen
  19. H

    Salt, how much?

    My daughter is now 2 and we do not add salt to her diet because she gets it through her table food. She eats pretzels and salty meats so that should do it. When she was a baby we did the 1/8 of a teaspoon to her formula and sometimes added a little more on the very hot days. Karen
  20. H

    Salt, how much?

    My daughter is now 2 and we do not add salt to her diet because she gets it through her table food. She eats pretzels and salty meats so that should do it. When she was a baby we did the 1/8 of a teaspoon to her formula and sometimes added a little more on the very hot days. Karen
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