Cystic Fibrosis Forum (EXP)

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    Marine sponges advance cystic fibrosis research

    Just saw this in the news today... very interesting... http://www.mcgill.ca/newsroom/channels/news/marine-sponges-advance-cystic-fibrosis-research-218728
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    home spirometry?

    Eric, Here is a link to our new online store. http://www.medrise.com/spirometer.html where you can find more information about home spirometers. We also offer FREE Ground Shipping and if you use this coupon: CFTOOLS102012 you will get an additional 15% Off. If you have any question let me...
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    Arikace

    Here is the link to their website. http://www.insmed.com/arikace.php
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    Personal Spirometry Survey Comments

    How to order your personal spirometer from our store. Placing an order with Medrise.com is easy. There's no need to create an account first. You automatically create an account when you place your first order online. Here are the steps you need to follow to place an order. Find the item you...
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    CF: Establishing Healthy CF Care Habits

    Now online CF care habits are important for people to follow as they are striving to stay healthy. In a new brief video at http://bit.ly/Q2xIRB, hear from CF patients, caregivers and experts who share tips on treatment schedules, good eating habits and the importance of exercise. The video...
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    emoticons by Mockinbird~

    If anyone has an emoticons or icons that wanted to be on the site just email me the image and I will add.
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    Ive posted positie threads about raising my fev and had no responses ?:(

    LouLou here is the link: http://forum.cysticfibrosis.com/threads/35261-Update-on-fev-!!-raised-it-to-35-from-27-!-Lung-colapsed-5mnths-ago!
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    Is nobody seeing my posts?

    I don't see a blog either... I saw some threads that she posted. http://forum.cysticfibrosis.com/threads/35322-Diaphragmatic-muscle-tightness-need-advice-from-those-who-had-lung-colapse...
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    We need a "like" button!!

    Amber, after you click the thumbs up button it will display a number 1 and a red thumbs down. You only click on the red thumbs down if you want to remove your thumbs up.
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    We need a "like" button!!

    Twistofchaos... the idea is not to make people uncomfortable about posting... that is why I have disable how many thumbs up a member has received or gave. Like Jennyc and Beautifulsoul were saying... its just to check that they like the post. It's all anonymous and no one will be able to see how...
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    CysticFibrosis.com Facebook App

    I Just want to let you all know that our new Facebook app is live. You can now do the following from Facebook. Read the Forum & Blogs Create new threads Reply to threads & blogs Here is the link for the Facebook app. https://apps.facebook.com/cysticfibrosisforum/ Any questions or comments...
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    We need a "like" button!!

    Ok... I found something... I will have it ready by tomorrow... you will be able to thumbs up a post.
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    We need a "like" button!!

    Jenny.. got it... I will see what I can do... So basically just like the comment... :)
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    We need a "like" button!!

    There is a Facebook Like button at the top of the thread, near the thread title to the left of your screen. Also if you want to Rate the thread. Scroll to the top and you will see some menus on the right side of the screen (Rate this thread)...
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    Question most likely answered by Ennio

    BikerEd you can change the time zone for your profile. Click on "Settings" Under "My Account" click on "General Settings" and scroll down to Date & Time Options. Let me know if this works for you.
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    Happy 37th Birthday moxie1! (11th of August)

    Happy 37th Birthday moxie1! Hope you have a wonderful day, and very best wishes from everyone here at the Forum. (11th of August)
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    Website Updates!

    You can now link your Facebook account to your profile on CysticFibrosis.com . We also just submitted to Apple our CysticFibrosis.com Application, once approved by Apple I will post the link. Thanks,
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    CF: Accepting and Living Your Life with CF

    Now online! How do you talk to people about CF? Go to http://bit.ly/Nzo4oU to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s...
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    Website Updates!

    I merge both username and now your username will be "mcgrad2006"...
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    chat now

    Please send me a PM with more information. Thanks
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