Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    Cf care in buffalo and/or Rochester

    I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...
  2. M

    Cf care in buffalo and/or Rochester

    I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...
  3. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  4. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  5. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  6. M

    Thoughts on Make a Wish

    Heather i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make cuts and...
  7. M

    Thoughts on Make a Wish

    Heather i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make cuts and...
  8. M

    Thoughts on Make a Wish

    Heather <br /> <br />i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make...
  9. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a> They provide great service, overnight shipping, and can help get you into contact with services to help pay for co-pays. The owners have...
  10. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a> They provide great service, overnight shipping, and can help get you into contact with services to help pay for co-pays. The owners have...
  11. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a><br /> <br />They provide great service, overnight shipping, and can help get you into contact with services to help pay for...
  12. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  13. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  14. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  15. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  16. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  17. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  18. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
  19. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
  20. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
Top