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Today Peter and I are at church. Marble collegiate church, nyc Participating in our annual tri faith worship service. Excellent representatives of three faiths. Christian: rev Robert chase, (he has professed an interest in helping us get cf supplies to Pakistan) Rabbi Angela Buchdahl...

​http://mobile.nytimes.com/2015/01/08/health/from-a-pile-of-dirt-hope-for-a-powerful-new-antibiotic.html

On this the first day of 2015....we (the leadership team) at cysticfibrosis.com wish you and yours a happy and healthy new year! We are planning many new opportunities for our community this year! Salt and Light, Jeanne

We wish you a beautiful holiday season! For us, it's Christmas with the family. You are our family and know we have many great new things planned for 2015 and you are always on our minds and hearts! Blessings, Jeanne and Peter Barnett

Today is Mel’s five year anniversary…a perfect day to install the new Remembering page which can be found on the main website http://www.cysticfibrosis.com/remembering/ ! (Thanks Chris Baldwin for doing this important work) Melissa joined cysticfibrosis.com in 1996. She was one of the first...

Many of you have been watching our transformation over the last few months. It has been steady and efficient. We tried not to change much about the forums, just made them more usable. But now Chris Baldwin PhD scientist, web specialist (our CEO) has moved into full gear and made big changes...

https://www.youtube.com/watch?v=xc6KlUhWqcQ

CF Book nominated for People's Book Prize - help CF author to win! 0 Comments by Tim Wotton , My memoir (getting to 40 with CF) called 'How have I cheated death?' has been nominated for the People's Book Prize! Please help me to win before the end of November 2014 by voting for me via this...

This is an original post from: mmoders I wanted to highlight it, because I know this is a very current topic, as new formulations for medications are being studied at this time, more than ever. Getting it right for our children is of the utmost importance. I know we will be hearing more about...

https://m.youtube.com/watch?v=iMkQT18RVqc My good friend Adrienne always can say something important in a minute!

We have an opportunity for you to contribute to a CF study via a 20-25 min telephone interview. The organization running the study will compensate you $25 USD for your time as well as make a donation to the our CFTechnology.org non-profit foundation, which will be used 100% to grow and support...

If and Why you SHOULD care! Bills: H.R. 3306 S 2662 should be on the “tip of your i-phones” Read these summaries of bills which aim to expand telehealth coverage: 1. Bill H.R. 3306 House of Representatives Rep. Harper, Gregg [R-MS-3] (Introduced 10/22/2013) This bill is co-sponsored by...

The Boomer Esiason Foundation’s “Run to Breathe” event took place July 12, through Central Park in New York. The race attracted more than 7,000 participants with the goal to encourage cystic fibrosis patients and families to stay active. Chiesi USA supported this year’s race. Steve Leach...

http://www.youtube.com/watch?v=oKs0yVHCfAk I saw this video (not CF Patients) and was reminded of all the time CFers spend that isn't even identified or quantified. The treatment burden covers more areas than realized by these patients Dr. Sawicki gives a radio broadcast on treatment burdens...

http://nuviun.com/content/news/adheretech-gets-175-million-and-second-patent-readies-nextgen-smart-pill-bottle

There have often been trained scientists here. One I love to remember is: lightnlife, Lauren Beyenhoff's user name. Lauren was a scientist who wrote some great articles for us. One I highlight today was written in May of 2008, when she interviewed Francis Collins, the director of the National...

http://nuviun.com/content/news/cleveland-clinic-abu-dhabi-going-fully-digital-as-it-opens-in-2015 Chris Baldwin is in Amsterdam working with Duke at the Amsterdam Institute of Global Health. Hey Chris.... Are there plans for Duke Digital in global? just wondering....

Here at cysticfibrosis.com, we know that scientists matter. They are behind all the treatments taken. I remember the first days of cysticfibrosis.com when people were having trouble with the directions for taking Pulmozyme…we went right to the Genetech Website: www.gene.com and right on the...

http://www.cnbc.com/id/101783126#.

Dear Members and Friends of CysticFibrosis.com, Many of you may already have noticed the presence of Chris Baldwin here at the forums. I met Chris on LinkedIn during the spring of 2013. As many of you know, in my “other life”, I am a “domainer”. I began my career on the web in 1996...