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<P>Yep, it's true. Sean is getting a G-tube next week. No one is happy about it least of all, Sean. He's sworn up and down that he will be giving up all activities and that without a doubt, I am ruining his life. Of course I know I'm not ruining his life, we're just trying to get him back on the...

Hi All, Just wanted to let you know that our older son Neil is heading to DC to represent his brother, Sean, and everyone else with CF as part of the CFF's Teen Sibling Advocacy day. There are about 20 teen siblings participating and they will each be speaking to several Congressmen, Senators...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...

At our clinic visit today, Sean's Dr. made the decision to admit him. His PFT's were down quite a bit and it's been a while since he's had a tune-up so we're waiting for a bed. Needless to say, Sean was not happy about the news <img src="i/expressions/face-icon-small-mad.gif" border="0"> As...

Hey Everyone, I just wanted to let everyone know that it's almost here... the annual CF Winter Beach Blast. This is a great fundraiser for CF and LOADS of fun <img src="i/expressions/wine.gif" border="0"> so if you aren't too far away from Ann Arbor, come on out and join us. "Our own" Emily...

Some of you may be familar with the fact that Sean's Dr. wants to go the G-tube route. Sean and I aren't too thrilled with the prospect. Sean was doing a great job eating more and things were looking up (i.e. his Dr. agreed to put off the G-tube a bit longer). However, with school and...

Well, for some time now Sean's Dr. has been "mentioning" a feeding tube. He's been working hard to gain weight and has done a good job but he's still at the bottom of the charts. His Dr. thinks it's time. She's given him another 4 weeks to try and gain 2 pounds but honestly I think she's made...

Anybody here on Spiriva? Sean's getting ready to start a study and I've heard good things about improvement in PFT's.

If you live in SE Michigan, make sure you check out this weekend's Beach Bash, <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpartyforbreath.com/index.html">http://www.cfpartyforbreath.com/index.html</a> Hope to see you there!!!

If you live in SE Michigan, make sure you check out this weekend's Beach Bash, <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpartyforbreath.com/index.html">http://www.cfpartyforbreath.com/index.html</a> Hope to see you there!!!

Ok, so on Sunday evening, Sean's hockey team was playing in the championship game of a local tournament. Shortly after the game began, on Sean's 2nd shift, he was the unfortunate recipient of a VERY cheap shot into the boards. Sean's shoulder was just above the edge of the boards which is...

6 Myths About the Detroit 3 Detroit Free Press By Mark Phelan Nov. 17, 2008 The debate over aid to the Detroit-based automakers is awash with half-truths and misrepresentations that are endlessly repeated by everyone from members of Congress to journalists. Here are six myths about the...

Sean's been put on Tobi for a month. It's been years since his last round of Tobi so I need a refresher... What neb should he/shouldn't he use? I seem to remember several discussions on here about which neb cups are good to use with Tobi and which aren't. The nurse told me to make sure he...

Ok, I admit I'm not on as much as I used to be but it's been a few weeks since I've seen any posts from Terri. Has anyone heard from her?

I've done a good amount of reading but there is just so much out there. I'm hoping people that already have a treadmill can give me some insight on what I should be shopping for (i.e. have to haves, not so important, the good, the bad, the ugly <img src="i/expressions/face-icon-small-smile.gif"...

One of the Border Collie groups I belong to sent this along to me. Figured I'd post it here and try and help out... <div class="FTQUOTE"><begin quote>Free Food for Animal Shelter Hi, all you animal lovers. This is pretty simple.. Please tell ten (or more) friends to tell ten today! The...

Just curious how Courtney is doing? Oddly enough I thought of her the other day because of a news story about a girl being "cyber-bullied" and it reminded me of Courtney. Hope all is well with Courtney, your home biz, and the rest of the fam.

It's still a long way from a cure but this sounds very positive! <a target=_blank class=ftalternatingbarlinklarge href="http://news.yahoo.com/s/nm/20070918/sc_nm/stemcells_lungs_dc">http://news.yahoo.com/s/nm/200..._nm/stemcells_lungs_dc</a>

Haven't seen her post in a few days and just wanted to make sure everything is "ok".

Like so many here the news of Debbie's passing came as a complete shock to me. Of course, I went back and read her blog. I didn't know Debbie well but she was certainly one of those people I always read. If I saw her name attached to a post, I read it. I thought it would be a nice tribute to...