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Sean was just put on Cipro for the first time. He's had a cough for a while now and started coughing up "greenies". His Dr. put him on Cipro based mostly on what she's been seeing in other patients, Sean's history, and the fact that it's the holidays (a lot of people contact). Anyway, he's...

Ok, this is a little complicated but I'll try and keep it simple. We live in Michigan and unti this year received Children's Special Health Care (like Medicaid) to help offset the cost of Sean's medical expenses. Basically, everything was billed through my or my husband's health insurance and...

Hey everyone, I was just visiting Allan's site and saw a post from Jess' mom. <a target=new class=ftalternatingbarlinklarge href="http://www.save-allan.org/forum/viewtopic.php?t=165">Alllan's site</a> I think she raises a great point! We should all get involved and help keep Allan's fight...

Does anyone here have a child that is participating or has participated in the growth hormone study?

I saw on the Adult section that people were posting pics of themselves. I thought it would be nice if us proud family members could post some pics of our beloved CFers. So, here goes... Neil's the big one, Sean's the little one and the floating head is our dog Yukon swimming in Lake Huron.

I've flown tons of times starting from when I was very young. I take several flights a year and it seems that every time I fly, I get more and more nervous about it. I don't start getting nervous until a day or two before and then by the night before the flight, I've got myself worked into a...

Ok, there's been a lot of negativity around here recently so I'm hoping this will help change directions... To the CF Adults, What are some of your biggest accomplishments/things you are most proud of? The reason I ask is that I would like to pass these stories on to my CFer. He's going into...

Does anyone know if there's a website that has a list of all the CF mutations they've found to date. I know they're constantly finding new mutations but I was just curious if there was any kind of online database accessible to us.

I'm looking for some advice/opinions. As you know, my youngest son has CF. When he was diagnosed at 11 weeks we had our oldest son tested (sweat test). He was 2 1/2 at the time and the test came back negative. I don't remember the number and am not sure I ever knew it. CF was so new to me...

I'm sure you're all aware of the proposed budget cuts to CSHC, including funding to the adult CF program. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Attached is an e-mail I recieved with some positive news but there is still plenty of work to do. So, if you live in Michigan...

Looking for some help here...We've just moved to a new school district and are having trouble 'convincing' the administration that our son should not be required to go to the school office for his enzymes at every meal/snack. His doctor has written letters stating that he's responsible enough to...