Cystic Fibrosis Forum (EXP)

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  1. M

    Wanting a Transplant

    I can tell you I have been waiting 5 months now and for me the wait hasn't been bad at all. I know lots of people who have had transplants and not one of them has regretted the decision at all. As for life expectancy it's different for everyone, I have one friend who is going on 20 yrs with her...
  2. M

    Wanting a Transplant

    I can tell you I have been waiting 5 months now and for me the wait hasn't been bad at all. I know lots of people who have had transplants and not one of them has regretted the decision at all. As for life expectancy it's different for everyone, I have one friend who is going on 20 yrs with her...
  3. M

    Wanting a Transplant

    I can tell you I have been waiting 5 months now and for me the wait hasn't been bad at all. I know lots of people who have had transplants and not one of them has regretted the decision at all. As for life expectancy it's different for everyone, I have one friend who is going on 20 yrs with her...
  4. M

    losing baby teeth

    Dark or stained teeth is very common from all the meds we take. When he's older crest white strips are an easy touch up, I think I started using them in my teens but I also drink a lot of tea. I believe we were also told that extra plaque build up was common from breathing through the mouth a lot.
  5. M

    losing baby teeth

    Dark or stained teeth is very common from all the meds we take. When he's older crest white strips are an easy touch up, I think I started using them in my teens but I also drink a lot of tea. I believe we were also told that extra plaque build up was common from breathing through the mouth a lot.
  6. M

    losing baby teeth

    Dark or stained teeth is very common from all the meds we take. When he's older crest white strips are an easy touch up, I think I started using them in my teens but I also drink a lot of tea. I believe we were also told that extra plaque build up was common from breathing through the mouth a lot.
  7. M

    IV antbx didn't work

    Another thing I do is we always pair tobra with another med even though my culture says I'm not sensitive anymore. My doc says it has a kind of boosting effect for the other meds and we get better results this way.
  8. M

    IV antbx didn't work

    Another thing I do is we always pair tobra with another med even though my culture says I'm not sensitive anymore. My doc says it has a kind of boosting effect for the other meds and we get better results this way.
  9. M

    IV antbx didn't work

    Another thing I do is we always pair tobra with another med even though my culture says I'm not sensitive anymore. My doc says it has a kind of boosting effect for the other meds and we get better results this way.
  10. M

    IV antbx didn't work

    Could be you need to do longer than just two weeks or switch meds. When I was still pretty healthy it wasn't uncommon to do three weeks sometimes. Now that I'm sicker and pfts are crappy it's not uncommon to do 4 weeks. I always thought that they only do two weeks at a time and the first time I...
  11. M

    IV antbx didn't work

    Could be you need to do longer than just two weeks or switch meds. When I was still pretty healthy it wasn't uncommon to do three weeks sometimes. Now that I'm sicker and pfts are crappy it's not uncommon to do 4 weeks. I always thought that they only do two weeks at a time and the first time I...
  12. M

    IV antbx didn't work

    Could be you need to do longer than just two weeks or switch meds. When I was still pretty healthy it wasn't uncommon to do three weeks sometimes. Now that I'm sicker and pfts are crappy it's not uncommon to do 4 weeks. I always thought that they only do two weeks at a time and the first time I...
  13. M

    nicotine and transplant

    My docs said not to even be around smoking because if it's detected in your bloodwork they take you off the list for like 6 months if I remember correctly.
  14. M

    nicotine and transplant

    My docs said not to even be around smoking because if it's detected in your bloodwork they take you off the list for like 6 months if I remember correctly.
  15. M

    nicotine and transplant

    My docs said not to even be around smoking because if it's detected in your bloodwork they take you off the list for like 6 months if I remember correctly.
  16. M

    I'm refusing a picc

    Depending on the drug a normal iv may only last a day or two because the stronger drugs are hard on the veins.
  17. M

    I'm refusing a picc

    Depending on the drug a normal iv may only last a day or two because the stronger drugs are hard on the veins.
  18. M

    I'm refusing a picc

    Depending on the drug a normal iv may only last a day or two because the stronger drugs are hard on the veins.
  19. M

    Improving Lung Function in Child

    Any activity is better than no activity. Growing up I was involved in tons of organized sports both in and out of school and that was very important. As soon as I graduated and stopped most of my activities I started getting sick a lot more and my pfts started dropping. Another good thing is...
  20. M

    Improving Lung Function in Child

    Any activity is better than no activity. Growing up I was involved in tons of organized sports both in and out of school and that was very important. As soon as I graduated and stopped most of my activities I started getting sick a lot more and my pfts started dropping. Another good thing is...
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