Cystic Fibrosis Forum (EXP)

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  1. beautifulsoul

    Thankful Thursday 9/3

    What am I thankful for today? Today I'm thankful for the bookstore & all the billions of books there are to read! At the rate that I've been reading lately I should probably check out the library instead of spending money at the bookstore. However, the bookstore changes their bargain rack every...
  2. beautifulsoul

    Weekly pill container

    Nothing says it's the end of the week like an empty pill container! Is it just me or does time just fly by? It seems like I just filled my meds a few days ago. How many of you have weekly storage or do you just take them straight from the bottle? I never had a weekly container until after my...
  3. beautifulsoul

    Thankful Thursday

    Welcome to my newest blog! Please join this weekly blog post with me. Today I'm thankful for my husbands career. He is a Co-manager at a grocery store. He just received his yearly raise and it's the highest he's gotten so far! He is very dedicated and works hard. Just like any other job there...
  4. beautifulsoul

    Cycle for Life. (Cyclists!)

    Attention Cyclists!...Plenty of time to get a team together. Join a team or Find your local chapter and donate. I love the name of my local team. The Sputum Spinners! lol :D http://fightcf.cff.org/site/PageServer?pagename=cy_homepage
  5. beautifulsoul

    CF workout/running clothing

    Our very own CFer Emily Schaller runs the Rock CF foundation and has some pretty cool "workout" shirts and pants for sale! Along with other novelty items like hats, mugs and water bottles. Check it out http://rockcf.storenvy.com I love this one...
  6. beautifulsoul

    Just Married! (Pictures included)

    Hey Friends! I just got married on May 9th. I'm almost 24 years old with CF. 8 Years Post transplant. Healthy & Happy :)
  7. beautifulsoul

    Recycle your medicine bottles!

    Save those empty medicine bottles!! We usually just trash our pill bottles when we finish the medicine inside. Malawi Project Inc. has a certain project called "Medicine Bottles for Malawi" The pharmacies & hospitals in Malawi normally don't have anything to wrap medicine in except for torn...
  8. beautifulsoul

    Positive sweat test, not a clear diagnoses? (looking for experiences)

    Hi Everyone, My mom posted in the newly diagnosed forum about a year ago. I'm posting what she originally posted (plus an update) in hopes of a few more responses. She has had two sweat tests done. The first result was 58 and the second one was 78 confirming a CF diagnoses. We already know one...
  9. beautifulsoul

    Good News!

    Hello everyone, I have many friends here. I wanted to share with members (and new people!) I just celebrated my 7 year double lung transplant anniversary. 3-13-2007 I'm doing extremely well. My lungs are healthy and I'm very happy to announce my engagement to my boyfriend of 4 years! :) Thanks...
  10. beautifulsoul

    Celebrating 7 year Transplant anniversary!

    Yesterday I celebrated 7 years post double lung transplant. (^) I'm doing extremely well. Healthy, happy and engaged to be married! :) Anyone with transplant questions feel free to ask. I'll do my best to answer with my knowledge.
  11. beautifulsoul

    6 years post transplant TODAY!

    I posted this on Facebook today but I know not everyone is involved with Facebook so I wanted to share it with everyone here as well! Today is my 6 year Transplant Anniversary date. I was transplanted when I was 15 years old. I'm now 21 years old :) I'm very thankful for my donor and her...
  12. beautifulsoul

    Honey Bee Gives Back

    Attention Parents/Guardians of Children with CF There is a new face book page for children with life threatening illnesses. You can sign your child up for the program and they will give you an individual "sponsor/donor" who will send gifts to your child and correspond with you by mail/e-mail or...
  13. beautifulsoul

    Thursday night chat! 8pm

    Please join us tonight in the chat room at 8pm eastern time. Everyone is welcome! I look forward to talking with you :)
  14. beautifulsoul

    Wednesday Night Chat! 8pm

    Hey everyone, please join us tonight at 8pm eastern time in the chat room. Look forward to talking with you all :) if you can't make it tonight, come back tomorrow night same time.
  15. beautifulsoul

    Wednesday Night CHAT! 8PM

    Hey Everyone :) Please join us tonight in the chat room at 8pm Eastern Time. If you can't make it tonight, check back tomorrow night for another chat. (same time) We are adding a Thursday night chat! Hope you can make it.
  16. beautifulsoul

    Friday Facts

    It's Friday! :) Today is the last Friday of the month. August passed by too quickly! Here is a fun post for the end of summer. If you have an iPod or music player (I'm assuming the majority of people do) put it on shuffle and list the first 4 songs that you listen to. If you don't have an iPod...
  17. beautifulsoul

    Chat Now!

    Join us in the Chat room now. Hope to see you there :)
  18. beautifulsoul

    Friday facts

    It's Friday! :) The school year is just beginning! Please share 4 facts about the things you enjoy(ed) related to SCHOOL/COLLEGE. OR what your kids, grandkids, nieces, nephew, etc. enjoy about school. Here is mine for this week... 1) My favorite subjects were writing, spelling and art class (if...
  19. beautifulsoul

    Tuesday treasures

    It's Tuesday! :) Please share a few sentences about your favorite memory of a childhood game. (such as board games, cards, pick up sticks, outside fun, etc.) Afterwards I have a mini fun game to share. Here is mine for the week... When I was very young I used to visit & spend the night at my...
  20. beautifulsoul

    Starting a new game...Anyone have idea's?

    We haven't played any games recently in the off topic section. I thought it would be fun to start a completely new thread. We have new forums and new members. Time for a change! Join the fun :) Does anyone remember any of the old word games or new ones we could play? If so please post and tell...
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