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Here's the latest news that's fit to print, I suppose. I've been feeling really crappy lately. About every 5 days I run a high fever between 101-102 degrees. I haven't told any of my Medical Team, I'm afraid of what they're going to say. I can't bear the thought of going back in the hospital...

I did my monthly blood work a week ago yesterday. This time, I asked the lab to send results to every doctor on my Medical Team. On Tue. I received a call from my GI. She said my liver phosphates & other indicators were extremely high; higher than she had ever seen. Upon hearing that, I called...

Wouldn't you know... I go braggin' about how good I'm feeling yesterday & today I wake up with a bad-ass bellyache! I know exactly what happened. My doctors in Tucson urged me to lower my enzyme intake because if I don't, they're going to damage my colon eventually. Well, I just didn't take...

I'm pretty tickled today... I finally cranked up my ATV & went for a little ride in the Pinal Mountains. It felt so good! This is the first time since February I've felt good enough to get out & go for a ride. I put on 31 miles today. It was beautiful up on the mountain! When I left home it was...

We got a letter in the mail today from the University of Arizona Transplant Program. It said they were ceasing their transplant program as of July 10th. The funny thing is, we received this letter on July 17th! Thank God there is another transplant center in Phoenix. Actually, this will probably...

This is nice; we had a major holiday with no major crisis! We really enjoyed the 4th. We went to my former boss's house for a BB-Q & fireworks viewing. They have a great view of the fireworks where they live. They BB-Q'ed chicken, hamburgers & hotdogs. It don't get more American, White Trash...

Hello my little blog. I figured I should update this thing. I just wanted to say that I am finally starting to feel better after the battle with 'C-Diff'. This hasn't been a fun row to hoe. Its been a real bitch. This little bug really knocked me to my knees. I finally finished all the oral...

Its been another 'interesting' 2 weeks here on the Ol' Rancho. On 5/28 Becky was in WI visiting her family. I was home, holding down the fort. Everything was fine & dandy until around 0830 on the morning of the 28th. I woke with the worst cramps & abdominal pain I've ever experienced. I laid...

Ooops, I did it again. Yesterday I got home from another 5 day stay in the hospital in Phoenix. Once again, I was diagnosed with a blood infection. I don't know what is causing this, but we REALLY need to get this figured out & fixed. I'm sick of feeling like I've been kicked around like a...

Yesterday, the nurse from my CF Pulmonoligist called. She gave me the results of my genetic testing. It seems my mutations are DF508-CFTR. I've never heard of CFTR before. Apparently it is a faily uncommon gene. Lucky me! People with the CFTR gene have excessive pancreatic deficiency. Boy...

Oh, man... This really sucks. There is (was) another man in my home town who had CF & a lung transplant. He had his transplant at age 21. Today, at the age of 38, he was killed in a single-vehicle accident. That really sucks to have gone through all he did medically only to be killed in this...

Is there anyone else out there getting pissed off & depressed because of the cost of this damn disease? After my last little 'wreck' the bills are mounting. I think I just need to say 'I WAS BORN THIS WAY! I DIDN'T ASK FOR THIS! I DON'T LIKE HAVING TO GO THROUGH ALL THE MEDICAL PROCEDURES & I...

Hey y'all... When I had my little 'wreck' in Idaho, the GI did a colonoscopy to make sure there was no damage to my colon. When I got home, my GI here in AZ looked at the report & informed me I had a polyp that had to be removed. While it was not cancerous at this time; if left alone it would...

Hey! Well, I had a real good time in Idaho visiting my Mom & family. I was there for a bit over a month; Jan 3rd until February 11th. I had started thinking about pointing my truck south when I got horribly sick. It all started on a Wednesday night, Thursday morning. I woke up around 1 AM...

Hello, I hope you all are well. I've started the Colistin treatments. So far, so good. It seems like the only side effects I'm suffering is extreme dry mouth while sleeping. I wake up many times a night with my tongue feeling like it was made out of cardboard. I have to keep a bottle of water...

Happy Thanksgiving y'all. I hope everyone had an enjoyable time with your families & friends. That's what it's all about you know. We should all be grateful for what we have & don't sweat that which we don't. If you're feeling well & you have a loving family & friends & enough food in your...

We went to see Dr. Knoper at UMC last Thrurs. for the follow up to the broncoscopy I had 2 weeks ago. I got as close to a clean bill of health as I'm ever going to get I guess. :) Dr. Knoper said that from listeining to & observing me, it appears the dilation was somewhat successful. I don't...

I've got to admit: I'm more than a little concerned should Obama be re-elected. If he is, there will be no chance to repeal the government take-over of our healthcare system. I've heard there will be caps instituted on how much can be spent per person per year for healthcare. I cost alot to...