Cystic Fibrosis Forum (EXP)

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  1. J

    Anyone out there having issues with Medicare part D?

    I ask this because it profoundly affects my med coverage. Even with my disability, I make too much for Medicaid and Medicare, yet I can get Medicaid because of my extremely high med. costs only with a spend down of about 1000 a month..that's right, 1000 a month! Medicare usually paid for my...
  2. J

    Sinus relief...

    I know this has been hashed out before, but I would love to know what you gals and guys do for sinus pain...My ENT is reluctant to do surgery now, so am I...I didn't like the sinus scraping I had two months ago. I do saline rinses, gets rid of some of the congestion and pain and use warm...
  3. J

    Getting frustrated..(venting)

    Hi all...I have been home from the hospital a little over two weeks after being treated aggressively with IV antibiotics for a total of 8 weeks for my recurring B. cepacia pneumonia. Before I was discharged, I had a bronch which showed very little cepacia but also steno maltophilia in my lungs...
  4. J

    Hi there, I am new here....

    Hello, I am 33 recently diagnosed with CF...how many of you have been diagnosed as adults? I am just curious. My sweat test was equivocal at 48 with a repeat on the way, I grow cepacia in my lungs (but I am vent dependent, still rare for a ventilated person to grow that out I hear), have...
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