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My rule of thumb is to do whatever I can tolerate after surgery. I would suggest getting in touch with the clinic, but also starting out slow and working back up to where he usually is. I recently had a port placed and instead of doing my usual two 20 minute vest sessions, the day of the surgery...

I got veneers and they were the best decision I ever made. The constant comments and questions about my "lack" of dental hygiene because my teeth were stained really wore me down. So when I got the veneers and the questions and comments stopped, it was fantastic.

I've been on actigall from the phase III study and I know it has made a difference. I had liver damage when I started and we monitor my liver through blood work every other regular clinic visit, and an ultrasound every other year. So far, it has really worked well and the damage rate has slowed...

I just had an IR port placed. The line does show, but it looks more like a vein than anything else. The port sticks out a little bit as well, but where mine is placed it doesn't really show through clothes too much. I'm also on the thin side, so I get where you're coming from there.

I've never really had a problem. After is go through the security checkpoint, they usually pull me off to the side, run a quick test to make sure it doesn't have bomb making residue, and then they let me go on my way. I always take a doctors note to explain what they vest is, one to explain my...

I have been using it with each vest treatment for the past few weeks. We have a family friend who is a RT and she brought it for me to use. I'm loving it. My cough is not more productive during the treatment, but about 15-20 minutes after I'm done, I really start coughing things up.

I can't really comment on the IVs for sinus issues, all my IVs have been lung caused. I did spend a lot of time in high school on IVs though, so I can provide a perspective there. At the start of an IV round, I'd usually spend about 5 days in the hospital, sometimes less and sometimes more...

I'll have to see if this is for Kindle book purchases as well. If so, the foundation could raise a lot off me, haha.

It can beside cult for people who don't have a disease to know what to say to a person who does. In my opinion, it sounds like you relative was trying to show a gratefulness that you're doing well. Could there have been a better way to go about it? There usually is. But it doesn't sound like it...

I'm not a mom of a CFer, so I don't have that perspective. However, as a CFer, I must echo what others have said. Your daughter has CF. CF does not have your daughter. Let her live just as you would a child without CF. Putting her in a bubble, in my opinion, may reduce the number of times...

I've had two vastly different experiences with coughing up blood. The first set of experiences lasted 4 years. Every three months, I would cough up a large amount of blood soaked mucus, anywhere from a half a cup to a cup. Once I coughed up even more than that over a 24 hour period. The second...

Something else my parents did with me growing up was be relaxed about my treatments. I was supposed to do my vest twice a day, for a total of 14 treatments a week. As long as I did 10 or 11 a week, they didn't say anything. If I stayed up late one night to study and just couldn't bring myself to...

My parents were lucky in that I didn't do the stereotypical teen rebelling, but very unlucky because I did the CF rebelling. They let me do things my way so I could see the consequences. I know that sitting back and watching me harm myself by not doing treatments was one of the hardest things...

I agree with Melissa. I used to have panic attacks and the tingly feeling, lightheaded feeling, and SoB is exactly how I would feel. Once I learned a few meditation and breathing tricks, I was able to get control over the attacks and only rarely have them now.

I've gone camping from the time I was only a could months old. We've taken the necessary precautions and I stay out of the smoke from the fire, but other that that I just enjoy it. I'd say to go camping as often as you can because some great memories are made there.

I also just had a tune-up and a sinus surgery and my cough, up until I started to get sick again, was from drainage down my throat from the surgery. It was completely unproductive and one of the most annoying coughs I've ever dealt with. I tried to clear my throat often and drink a lot of fluid...

I recently (well, in the past three or so years) went through something similar. I would go to bed fine and wake up with such horrible joint pain I didn't want to move. This was usually accompanied by swollen knuckles and spots that didn't hurt or itch, but were clearly noticeable. I spoke to my...

I carry hand sanitizer around in my purse to use when I can't get to a sink and soap. I am religious about washing my hands in order to prevent the spread. Of course, I just cultured MRSA for the first time, but I won't be changing any of my practices once I go home.

My typical hospital stay was two weeks, with the rare occasional opportunity to go home on IV meds to finish out the two weeks. My last two stays have lasted 28 days and 21 days each, and I'm back in the hospital after a month away. This stay may be another longer one, since we're trying to kill...

PACmommy, I love hearing from parents who let their cf kids be kids. Like you, my parents never restricted me based on CF. If I wanted to try something, they let me. For me, being able to grow up as a kid, not a CF kid, gave me so many amazing and wonderful memories and such a full childhood...