Cystic Fibrosis Forum (EXP)

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  1. I

    Netflix!!!!! Must see

    The whole online interaction was interesting to me. I was very active on this site starting going back almost 9 years ago as "icefisherman". One by one people i talked to and related to passed away, or faded away. Those people like little debbie, jazzysmom, thelizardqueen, Blake, Allie(lost her...
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    Netflix!!!!! Must see

    Just finished it, thank you for finding it and sharing.
  3. I

    Night Sweats

    I have started having night sweats for almost a year now. The odd thing is just my legs sweat from the knees don and they are soaked sometimes. I mentioned it to my doctor and he thought it was weird that it was my just my legs. I never found anything out about it, but i do get low grade...
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    Parents with HSrs w/CF

    If you or your son ever need to talk, I would be more than happy.
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    Parents with HSrs w/CF

    Trust me my teen years were hell on my parents, but when kids grow up with a lot to deal with they need to find themselves and deal with it thier own way. It has nothing to do with your job as a parent, in fact your should be proud because that want to live thier lives as themselves. Sometimes...
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    CF halloween ideas

    LOL I love this idea but I have to say it's hard to keep it g-rated. I have thought about this. You need more than a shirt. O2 tank? Neb cup? Hell just wear the vest with tubes! I like to find humor in my life, hope you can too! :-)
  7. I

    Questions with disability at work

    I am going through the same sort of thing. I was fired because the were no jobs in the whole plant the could accomodate my restrictions (avoid slips, falls, and cuts due to bloodthinners) I filed a case with eeoc that is in the works. As printer said contact CF legal and they will point you...
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    O2 levels and having O2 on hand

    I was wondering about people that have O2 on hand and thier levels. My head nurse recomended it a few times and after a few bad days I e-mailed her to get the ball rolling. What numbers were you guys at before you had O2 in the house? I don't plan on using it much but i think it would be good...
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    Sick Days

    Great vent! We all need that sometimes. Our bad days are something that none of us are proud of, but a reality none the less. I think the fact that you stay in the right mindset says a lot for you. You are you. Good times and hard times. You already know the answer. Just be yourself. If it feels...
  10. I

    Camping

    I just wanted to share my point of view. I grew up in the outdoors, and i still enjoy the outdoors. Trying to avoid an infection that is everywhere, that we all get eventually, is not worth as much as some good outdoor family time. take reasonable precautions, but dont let it cut into who you...
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    Is any other CFer jealous of other diseases?

    I think this has more to do with dealing with our own issues than other diseases. There are more serious conditions that get less media and less serious that get more media. We cant live our lives for anymore than just that...our lives. If you are passionate about the CFF make it heard. If...
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    what to do when i get frustrated/sad/discouraged

    Find an alone time happy place. I enjoy the outdoors. Find something that takes you away and feels rewarding at the end of the day. I have had very low low's but deep down i know i just need to think and reflect on life sometimes. your life is your own, make it wahtever you want.
  13. I

    fired for work restrictions

    thanks for the feedback everyone. Ive been listeneing to it all and have got the ball rolling on a few things.
  14. I

    fired for work restrictions

    I have a copy of my restrictions from my doctor. Work said that the are sending me a termination letter. I also have recordings of all the conversations i had with work because i knew it would come to this. I'm not the first one this company has pushed out the door.
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    fired for work restrictions

    It was the HR peron that let me go. Company has about 200 employees.
  16. I

    fired for work restrictions

    Its over 700/month for cobra and i have no income. I'm still looking into things. SSDI takes months and to find a job making anywhere near what i was making will be very hard. Even at my old pay rate, mortgage, bills and throw cobra ontop of that It would be hard to do. Hopefully i can get...
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    fired for work restrictions

    I'm in NY. I plan on filing a complaint with the EEOC. Just not sure if its worth my while to get more into it.
  18. I

    fired for work restrictions

    they said it was because of the restrictions, which i didnt think would be too hard for them to accomodate. I'm looking into legal things.
  19. I

    fired for work restrictions

    My work called me today to say my employement has been terminated. Back in December i got a blood clot after getting my port placed and was put on blood thinners. The doctors note stated" patient may return to work 12/3/12. due to patients condition restrictions as follow. 1) must stay clear...
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    Teens, what to expect for the years ahead?

    As it has been said earlier, every case is different. The only thing you can do is deal with things as them come at you. I had a very normal teenage life, and really didn't feel bad enough for it to hold me back from anything untill my 20's. I'm 30 now, own a house, decent job, and get around...
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