Cystic Fibrosis Forum (EXP)

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  1. E

    CF Equipment?

    I had similar issues with Pari compressors, I went through two in a few years b/c they just kept getting slower and louder despite changing filters. I recalled having nebs for many years that lasted much longer. I did a lot of research and settled on the Devilbiss Pulmo-Aide as well. I had it...
  2. E

    CF Music Project Update Thread

    I can still do e-drums. And sent some CF samples before direction was changed.
  3. E

    CF Music Project Update Thread

    I can still do e-drums. And sent some CF samples before direction was changed.
  4. E

    CF Music Project Update Thread

    I can still do e-drums. And sent some CF samples before direction was changed.
  5. E

    Bronchiectasis

    I've got it too, it's a pretty common side effect.
  6. E

    Bronchiectasis

    I've got it too, it's a pretty common side effect.
  7. E

    Bronchiectasis

    I've got it too, it's a pretty common side effect.
  8. E

    food to lung symptom correlations?

    I don't want to seem like I'm advocating anything here, I know there's a lot of parents in this forum, I'm just asking questions. So, I feel like I've noticed a pattern over a few years that certain foods seem to exacerbate symptoms symptoms of inflammation or congestion, at least temporarily...
  9. E

    food to lung symptom correlations?

    I don't want to seem like I'm advocating anything here, I know there's a lot of parents in this forum, I'm just asking questions. So, I feel like I've noticed a pattern over a few years that certain foods seem to exacerbate symptoms symptoms of inflammation or congestion, at least temporarily...
  10. E

    food to lung symptom correlations?

    I don't want to seem like I'm advocating anything here, I know there's a lot of parents in this forum, I'm just asking questions. <br /> <br />So, I feel like I've noticed a pattern over a few years that certain foods seem to exacerbate symptoms symptoms of inflammation or congestion, at least...
  11. E

    CF song

    Hey guys, haven't logged in for a few days, just got caught up on the drama. Anyways, I'm on skype fairly frequently. Skype name is: erocka77 I'll admit slacking off, besides developing ideas in my head and email. I gotta buy one of them midi cables and figure out how to link my drums to the...
  12. E

    CF song

    Hey guys, haven't logged in for a few days, just got caught up on the drama. Anyways, I'm on skype fairly frequently. Skype name is: erocka77 I'll admit slacking off, besides developing ideas in my head and email. I gotta buy one of them midi cables and figure out how to link my drums to the...
  13. E

    CF song

    Hey guys, haven't logged in for a few days, just got caught up on the drama. <br />Anyways, I'm on skype fairly frequently. Skype name is: erocka77 <br />I'll admit slacking off, besides developing ideas in my head and email. I gotta buy one of them midi cables and figure out how to link my...
  14. E

    How do you do it?

    I just have a regimen for weekdays. I'm sure some CF'ers tend to exaggerate a little how much time they devote. I've done it in the past. I wake up at 6:20 this morning, doing vest and saline right now as I check email and type here. Plus the saline sinus rinses, CF seems to add about 40 minutes...
  15. E

    How do you do it?

    I just have a regimen for weekdays. I'm sure some CF'ers tend to exaggerate a little how much time they devote. I've done it in the past. I wake up at 6:20 this morning, doing vest and saline right now as I check email and type here. Plus the saline sinus rinses, CF seems to add about 40 minutes...
  16. E

    How do you do it?

    I just have a regimen for weekdays. I'm sure some CF'ers tend to exaggerate a little how much time they devote. I've done it in the past. I wake up at 6:20 this morning, doing vest and saline right now as I check email and type here. Plus the saline sinus rinses, CF seems to add about 40 minutes...
  17. E

    Tune up before sinus surgery

    My 2nd time I got IV's right after the surgery. The first time I had the surgery I got unusually sick afterwards. I'd recommend sandwiching IV's on both sides.
  18. E

    Tune up before sinus surgery

    My 2nd time I got IV's right after the surgery. The first time I had the surgery I got unusually sick afterwards. I'd recommend sandwiching IV's on both sides.
  19. E

    Tune up before sinus surgery

    My 2nd time I got IV's right after the surgery. The first time I had the surgery I got unusually sick afterwards. I'd recommend sandwiching IV's on both sides.
  20. E

    CF song

    I was planning to jump into the midi world soon to work on this w/ my yamaha drums. Maybe this weekend.
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