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2. When Im in the hospital being pumped full of liquids and Im on my daily mirlax my s*** is legit water!!! Its nasty and guess what, stains my undies....plus I sometimes wake up in the middle of the night to me messing in my freaking pants. Like talk about ewwwwww! Then I gotta get up and clean...

Maybe itwould help if I started! 1. I have a feeding tube and the s*** that comes outaround the skin whole is so nasty n gooie n stinks....then to top it off itstains any freaking peice of clothing in wearing!!

2. When Im in the hospital being pumped full of liquids and Im on my daily mirlax my s*** is legit water!!! Its nasty and guess what, stains my undies....plus I sometimes wake up in the middle of the night to me messing in my freaking pants. Like talk about ewwwwww! Then I gotta get up and clean...

Thank you tho for commenting! Maybe it would help if I started! 1. I have a feeding tube and the s*** that comes out around the skin whole is so nasty n gooie n stinks....then to top it off it stains any freaking peice of clothing in wearing!!

Hey guys! I’m working on a book about CF coming from anangle most know none about! But I need some help. I need some more ideas on thegross, maybe embarrassing moments or things that come along with this difficultdisease! Anything at all, please post a comment. This way you can stay anonymousand...

Hey guys! I’m working on a book about CF coming from anangle most know none about! But I need some help. I need some more ideas on thegross, maybe embarrassing moments or things that come along with this difficultdisease! Anything at all, please post a comment. This way you can stay anonymousand...

Please be careful with the med Amakacin......I was on long term IV meds, that being one of them. I lost 50% of my hearing because of that med, at age 13 I got hearing aids and Im 21 now. So just be cautious, if you feel like u arent hearing the best STOP it!

Please be careful with the med Amakacin......I was on long term IV meds, that being one of them. I lost 50% of my hearing because of that med, at age 13 I got hearing aids and Im 21 now. So just be cautious, if you feel like u arent hearing the best STOP it!

Please be careful with the med Amakacin......I was on long term IV meds, that being one of them. I lost 50% of my hearing because of that med, at age 13 I got hearing aids and Im 21 now. So just be cautious, if you feel like u arent hearing the best STOP it!

Thank you!

Thank you!

Thank you!

I here all this news about new meds for a certain genetic mutation of CF. But how does one find out their mutation and does it cost money?

I here all this news about new meds for a certain genetic mutation of CF. But how does one find out their mutation and does it cost money?

<BR>I here all this news about new meds for a certain genetic mutation of CF. But how does one find out their mutation and does it cost money?

I too read this and I do really hope it comes to the USA! It would be great to try!

I too read this and I do really hope it comes to the USA! It would be great to try!

I too read this and I do really hope it comes to the USA! It would be great to try!<BR>

Thank you so much TleighsHusband! I think it is time for me to at least have a hard convo like this with the most important person in my life, my mother. Thanks for the encouragement! Peace and Love-Megan

Thank you so much TleighsHusband! I think it is time for me to at least have a hard convo like this with the most important person in my life, my mother. Thanks for the encouragement! Peace and Love-Megan