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<P>My 7th grader has missed over 4 weeks of school so far. She has a 504 plan and received homebound instruction for each of the 2 2-week absences. How do you handle it when your child misses a day a week? </P> <P>I have been E-mailing her teachers1 week beforea scheduled doctor's appointment...

My daughter began doing hypertonic saline treatments a few months ago.  She has been wearing contacts for sports and recently she has been getting really dry eyes.  The other day the contacts seemed to really stick to her eyes when she tried to take them out right after during her night...

My daughter began doing hypertonic saline treatments a few months ago.  She has been wearing contacts for sports and recently she has been getting really dry eyes.  The other day the contacts seemed to really stick to her eyes when she tried to take them out right after during her night...

My daughter began doing hypertonic saline treatments a few months ago.  She has been wearing contacts for sports and recently she has been getting really dry eyes.  The other day the contacts seemed to really stick to her eyes when she tried to take them out right after during her night...

My daughter cultured a rare bacteria I am not sure the spelling, but pneumostisis bacteria is what the doctor sounded like she was saying.  She said it was rare and typically only a problem for immunocompromised patients.  Anyone culture this

<P>My daughter had FESS, Functional Endoscopic Sinus Surgery, bronchoscopy, and endoscopy this past Monday.  We were told that her Sinus CT showed her sinuses were impacted by old sinus infections and that they needed to be cleaned out.  After the sinus surgery the surgeon told us there was no...

<P>I have read posts about Hypertonic Saline and toddlers using it.  My 11 year old's doctor called and wants to start her on Hypertonic Saline and on Zythromycin prophylactically.  I am wondering what I am missing.  What is the down side to Hypertonic Saline?  Are there long term side affects? ...

My 11 year old saw ENT today and now we are scheduling a joint procedure for FEES sinus surgery and bronchoscopy for a sputum sample and lung wash.  How long should expect before my daughter could go back to school?

My daughter has failure to thrive down to .785tile weight 3% for height.  One GI suggeste that she have a pancreatic stimulation test for pancreatic insufficiency.  We want to this during bronchoscopy so she is sedated 1 time and since her gi and pulmonologist are at 2 different hospitals we...

My daughter has failure to thrive down to .785tile weight 3% for height.  One GI suggeste that she have a pancreatic stimulation test for pancreatic insufficiency.  We want to this during bronchoscopy so she is sedated 1 time and since her gi and pulmonologist are at 2 different hospitals we...

<P>As many of you know I have an 11 year old that is still in limbo in the diagnositic process for CF.  In the meantime, her pulmonologist has begun the "CF treatments" and she is doing much better, but still quite ill.  She now has a vest, alubuterol or Xopenex by nebulizer, Singulair, and on...

<P>A friend of mine is a Pediatric Nurse Practicioner in a pediatrician practice and she recently gave me great advice I wanted to share.  She suggested that I ask my pediatician for a copy of the letters that he receives from each specialist my DD goes to.  It is amazing how much concise...

<P>Saw the pediatrician yesterday becaue my daughters productive cough is back.  She only had 2 week of no cough in the past 10 months.  </P> <P> </P> <P>My DD has had a chronic cough for most of the past 10 months.  After her first NPD test she was tentatively diagnosed with CF, but then was...

<P>My daughter is 11 her decreased FEV1 low 58% December and high 88% April led us to CF testing. She is a CF carrier who had 2 NPD tests.  My DD went to immunology and 11 vials of blood later we are waiting for results.  Meanwhile, I did talk to the pulmonogist directly who ruled out CF, and...

I have an odd question.  I read a lot about CF and failure to thrive and my daughter has been dx FTT since 2 weeks when she dropped from 5 lbs 10z at birth to 4 lbs 0 oz and well never gets above 3rd%tile height or weight.  Recently she went from 59lbs to 52lbs during her hospitalization.  Her...

My 11 year old has been in the diagnostic process for Cystic Fibrosis.  Today she had her second Nasal Potential Difference test as part of this process.  We know she has the G542X mutation M470V polymorphism and 8G>C polymorphism as well as 7T and 9T variants.  The first NPD test showed...

My daughter is in the diagnostic process for Cystic Fibrosis and she has been complaining about knee pain for a number of months.  I have read a few posts about arthritis and its relationship to Cystic Fibrosis.  My daughter is scheduled for x-rays on Tuesday and has an appointment with an...

I have an 11 year old daughter who has been diagnosed with Severe asthma, GERD, and Failure to Thrive. he has G542X and 2 polymorphisms and 7t/9T variants. She had two negative sweat tests one age 4 CF center and 1 age 1 non-CF center. She has coughed since birth and at best hits the 3rd...