Cystic Fibrosis Forum (EXP)

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  1. J

    Question about MRI - fluid on spleen and pelvis

    Hi, My 8 year old son has been having pain and nausea for several months now. He is pancreatic insufficient and takes Creon. Because of complaints of pain and nausea, he had an MRCP (without contrast) done yesterday. I reveiced the report today (before hearing from the doctor). Everything...
  2. J

    Nausea every day

    Hi, My 8 year old son Justin was diagnosed last February. He is pancreatic insufficient, with his last fecal elastase numbers being 25, which is when they stopped testing him. He is on Creon. He started with nausea and pain in his upper mid abdomon (mostly left side) on and off since August...
  3. J

    Lyme's Disease

    Hi, My darling little 8 year old boy was just diagnosed with lyme's disease on top of CF. It has been a bad year for us. It anyone has any experience with CF and lyme's, please let me know. We are unsure how far the lyme's disease has progressed. The screenings were positive, but the...
  4. J

    Need a theme song for CF video. . . help please

    Hi, I am making a video of my beautiful son Justin (just turned 8) for the CF Gala as I/my husband are the bid speakers. Any suggestions on a song? I was thinking "I hope you dance" because I have always read the book with the words to him as well as he has been a ballet, tap and jazz dancer...
  5. J

    Help - Not sure what to do

    Hi, My just turned 8 year old son who was diagnosed in Feb is sick. He has a fever of 100.3, pain in chest and just not feeling well. He has had 5 pneumonias since Feb, 4 close together and one we caught early in August. Last culture was H. influ and moderate staph. My question is (this is...
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