Cystic Fibrosis Forum (EXP)

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  1. R

    G-Tube Advantage and recipes

    G-Tube Advantage “Let food be your medicine and Medicine be your food” Hippocrates For many years I looked at having to rely on a G-tube, to gain weight, as a negative thing. It seemed like a failure on my part for not gaining weight, laziness or just being overwhelmed with just having to deal...
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    Possible new way to fight lung infections

    Check out this article. http://www.spiritindia.com/health-care-news-articles-7534.html A study done in collaboration with the University of Washington found that using a metallic "Trojan Horse" - tricking the bacteria by replacing the iron they need from their environment with the metallic...
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    Vitamin B3 May Help Kill Superbugs

    Q. Does increasing neutrophils help or hinder CF? Nicotinamide, commonly known as vitamin B3, may help the innate immune system kill antibiotic-resistant staph bacteria, the so-called "superbugs". In lab work done with mice and human blood, researchers found high doses of the vitamin increased...
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    Gluten Free is the way to be healthier!

    Gluten Free is the way to be. If you are trying to be healthy and live with CF you have to take a very aggressive approach to your health. We do not want to do anyting difficult and we all want the silver bullet, but we need a strong foundation to be able to fight this disease: Gluten, dairy and...
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    Pneumonia Vaccine Shown to Actually Increase Bacterial Infections It Is Supposed to Prevent

    Pneumonia Vaccine Shown to Actually Increase Bacterial Infections It Is Supposed to Prevent Pneumonia Vaccine Shown to Actually Increase Bacterial Infections It Is Supposed to Prevent <h5></h5> <div class="article-date"> <h5>May 22 2012 <span class="gray">|<span...
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    VX 770 / VX 809 / VX 661

    It seems that they were having minimal response on the VX770/809 combo and now they are saying good results.ANyone have input? Interim Data from Phase 2 Combination Study of VX-809 and KALYDECO™ (ivacaftor) Showed Significant Improvements in Lung Function (FEV1) in People with Cystic Fibrosis...
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    Top 10 great things about having CF!

    Top 10 great things about having CF! <ol> <li>Jury duty and PE class is optional.</li> <li>When a friend forgets their medication you’re pretty sure “you got that”.</li> <li>When you jokingly say I got to fart, everyone leaves the room, quickly.</li> <li>You are pretty sure you can start your...
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    Disability benefits - How much do you receive?

    Disability benefits - How much do you receive? In researching SSDI and the requirements of such I was looking to see about how many years one needs to work to receive enough credits and figure out what the monthly benefit amount on average is. I know the parameters of the low end and high end...
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    Kalydeco or VX-770 off lable use?

    In order for a drug to be developed and go through FDA approval it has to show some significant benefit and activity. Those with the G551 gene have been taking Kalydeco have shown some real benefit. In the research there was some benefit with just DF508 in the range of 5-8%, this is not enough...
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    We are suffering from a perfect storm of health problems

    <br><p style="margin: 0in 0in 10pt;" class="MsoNormal"><font color="#000000" size="3" face="Calibri"></font> <font color="#000000" face="Times New Roman"></font><p style="margin: 0in 0in 0pt 0.5in; text-indent: -0.25in; mso-list: l0 level1 lfo2;" class="MsoListParagraphCxSpFirst"><font...
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    We are suffering from a perfect storm of health problems

    <br><font color="#000000" size="3" face="Times New Roman"> </font><p style="margin: 0in 0in 10pt;" class="MsoNormal"><font color="#000000" size="3" face="Calibri">CF and Nutrition</font><font color="#000000" size="3" face="Times New Roman"> </font><p style="margin: 0in 0in 10pt;"...
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    G-Tube Advantage

    <P>This is a reopost from a reply to Gretchn, thought others could find it helpful.</P> <P>I have been re inspired recently to really embrace my G-Tube and not for the obvious reasons. This is a long post so I will split in two. G-Tube Advantage "Let food be your medicine and Medicine be your...
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