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A friend of mine who I went to college with posted this video on facebook today. It's for the SickKids Foundation and I loved it and wanted to share it with you. It features kids who have chronic illnesses (CF was listed as one of them!) and them fighting and remaining strong. It made me cry and...
Hey everyone, I just wanted to bring this information to you guys because my doctor noticed a trend with new med ports.
I just got out of the hospital after a 12 day stay for a blood clot (that also resulted in a pulmonary embolism) that resulted from my new power med port being placed in...
My friend on Facebook who is a nurse posted this video about power washing the lungs for a rare lung disorder. It looks interesting and it made me wonder if this is something we as CF patients could have done. I know they do something like with when you have a bronchoscopy. With the added vest...
Hey guys, I wanted to get some feedback from those of you who have had sinus surgery. I'm having mine done in a couple of weeks and know that I will be admitted onto the CF floor after surgery for about a week. My biggest concern is the 4 or 5 days of packing in my nose and being forced to...
Hey everyone. I just wanted to let you guys in on a new thing my doctors have found to help with constipation issues. There is a med on the market that I'm sure you've heard of and seen commercials for called Linzess. It's made for Irritable Bowel Syndrome. A patient at my clinic who does...
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