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I am taking MAC drugs... almost at 3 month mark. I have been really careful during this cold and flu season. At Christmas my inlaws came and knowingly exposed me to cold and virus germs. We have told them over and over to stay home if they have been around sick people. They refuse to listen...

I have had a PICC for two months now. I have had some nerve pain... an Advil will fix it. I had to have two dressing changes this week due to the holidays and rescheduling my home health visit appointments. After this changed the bandage on Wednesday the skin under the wings of the PICC (the...

Let me start by saying NO I don't take insulin. I want to avoid insulin as long as I can. I have been having random low blood sugars. Today they tanked out at 59. That is the lowest I have EVER gone. It took me forever to get them back up (2 + hour to be more accurate). I when I deviate...

Yesterday I started Minocycline. Within about 15 minutes I was jittery and felt like my heart was racing. I took my second dose at bedtime and shorting after that I started feeling super weird. I could not be still and when I forced myself I felt like I was on a high dose of caffeine or...

The past few days my scalp itches something horrible. I am on MAC drugs and Amikacin. There seems to be no bumps on my scalp. Spots itch so bad I am afraid I will scratch my scalp raw. It is only certain parts of my head. I am drinking tons of water. Yeast infection?? Or just old...

I was diagnosed with MAC and Norcardia... I am not able to keep up with life due to the intense IV treatment and fatigue. I admitted to friends and family that I need help... help caring for my son and keeping up with my house. I have gotten pretty much NOTHING. Instead of helping me, my...

I just had my PICC dressing changed this morning. Shortly after the nurse left the site started to sting. The nurse removed a blood scab near the insertion site (stuck to the skin and and the PICC) . It hurt when she removed it and it seems to hurt in the same location now that it is gone...

A few days into my hospitalization I discovered I was allergic to the mesh PICC covers. My arm got all red and insanely itchy. It even burns in spots on my arm when I try to wear it. I have a super long extension on my PICC so that I can access it. We have tried all sorts of homemade covers...

This is the first time at home that I will have to IV drugs during the night. Hook up at 10pm and drug will be done running at 2am. Do you set an alarm and flush as soon as the drug is done?? What happens if I sleep through the alarm with the medicine ball still attached?? Bad things...

I just found out I cultured Nocardia. I am starting doripenem this morning. Anyone else culture this??? Anyone have successful treatment??? How long did you have to treat it until no longer cultured it???

I am starting my MAC treatment on Monday. Those of you who have done MAC drugs... what were your side effects?? Were they easy to manage?? Lose your vision... diminished vision?? Hives, rash, red skin?? How about joint pain or muscle pain??? What drugs cause the side effects?? I have...

I am going in less than two week from now to have a PICC put in and get med levels just right. It's the coming home and finding a good routine is what is freaking me out. I am a stay at home mom with a homeschooling pre-teen and I have a husband who works longs hours. I usually stay in...

I just got back from National Jewish. I have mycobacteria avium (have had it for a few years). Well.... we have no other choice than to treat it. I have a tennis ball sized cavity in my lung from it. This is sudden. My last CT scan didn't show this much damage. Yikes!! On top of it had...

I went to clinic yesterday and explained all of my symptoms. They also took another culture. It looks like my NTM (mycobacteria) may need to be treated. I am having a CT scan next month after I get rid of the creep and crude that I have now. Any one here been treated for NTM??? I am...

I have been sick all weekend. I tried getting a hold of my clinic but no luck. I have fever (low grade but enough to give me body aches and chills) tickly cough and getting very little sleep. I have flushed my sinuses and nothing comes out. I have been having such terrible chest spasm that...