Search results

forgot to include my email add: aimeesue82@yahoo.com

For those of you in the Illinois area but fed up with your dr. You could try Dr. Anthony Sauder at the Peoria Clinic. He works with both the peds and the adult clinic, but adult population is small for us. He's a pretty good doc. Not so hot with the bedside manner, but really knows his info...

For those of you in the Illinois area but fed up with your dr. You could try Dr. Anthony Sauder at the Peoria Clinic. He works with both the peds and the adult clinic, but adult population is small for us. He's a pretty good doc. Not so hot with the bedside manner, but really knows his info...

For those of you in the Illinois area but fed up with your dr. You could try Dr. Anthony Sauder at the Peoria Clinic. He works with both the peds and the adult clinic, but adult population is small for us. He's a pretty good doc. Not so hot with the bedside manner, but really knows his info...

For those of you in the Illinois area but fed up with your dr. You could try Dr. Anthony Sauder at the Peoria Clinic. He works with both the peds and the adult clinic, but adult population is small for us. He's a pretty good doc. Not so hot with the bedside manner, but really knows his info...

For those of you in the Illinois area but fed up with your dr. You could try Dr. Anthony Sauder at the Peoria Clinic. He works with both the peds and the adult clinic, but adult population is small for us. He's a pretty good doc. Not so hot with the bedside manner, but really knows his info...

I've read quite a few of the threads you've posted on and I just have a question for you. It's obvious that you're completely disgusted by this forum because you constatly bring up all the "negative comments" that get posted here. If you feel that way, why do you keep coming back?! I have...

Just out of curiosity, have any of you adopted children? I know they do background checks as well as income and health checks. I'm still a long way off from having kids, but just checking out all the options. I'm pretty sure I don't want to have kids with my genes (I know all the facts about...

Mine is in the underside of my left upper arm. When I hang my arm down at my side, it's about even with my boob. I really like mine located where it is because I am very self conscience about people seeing it. No one ever knows it's there unless I show them. It's about the size of a nickle...

I was just wondering if any of you have tried any "alternative" or homeopathic healing methods. I'm not thinking about giving up my antibiotics and traditional treatments cuz they've kept me very healthy for a long time. I've just heard people say things like acupuncture and homeopathic...

Hey all- Did anyone from this board attended the CF camp at Epworth Springs in Litchfield, Illinois? I went for about five years (1990-1995) before they had to close (turns out people with CF shouldn't do treatments around each other and share germs- who knew, huh?). Had a lot of great friends...

Hey Melanie- My name is Aimee, I live in Colorado also. I recognize your name and think we may have been at Children's at the same time once or twice. Although I don't think we've ever actually met. Welcome to this site. You'll find a TON of useful information here. And all the people are...

They sure do! Mine come in a box of about 50 I think.

Hi Sarah- I use 3% HTS (meaning, 3% salt). Normal saline is something like .9% salt. Distilled water I think is even less than that. Don't use the water expecting to get the same results as HTS. I've been told that 3% is the strongest you can get via perscription to use at home. When I'm in...

I know that most men with CF (like 99%) are sterile because of their lack of a Vas Deferens. I'm just wondering if anyone (Julie?) has any statistics about women. How does CF affect our fertility? Does the mucus build up damage the ovaries, uterus, or any other vital organ to reproduction...

I believe that when S298 passed last year, it was to make May of 2004 CF Awareness month. 2004 only, it doesn't continue every year. That's what I was told my someone from the CF foundation. -Aimee/22/Colorado

I've been on HTS for years now. 3% while I'm at home and when I got in for a tune up they kick it up to 6, 9, or 10%. I've noticed that it helps me produce right away. I actually use it in my IPV machine. This has been the best combo to get me to cough anything up during treatments. And (to...

I have a pretty high tolerance too. I'm 5'3", 125 lbs and can out drink most of my friends that are bigger than I am. I always thought it had something to do with not absorbing the alcohol. If I don't absorb vitamins and nutrients from food, why should alcohol be any different? Does that...

Vanessa- When my yoga instructor asked if I was okay, I replied "yeah, I'm alright. I just have a genetic lung disease and all the breathing exercises make my cough a lot." And the idiot said to me, "oh, is it contagious?" I thought to myself "what do you think genetic means, you yogi...

I go in for tune ups every six months (just got out today, actually!!!). Also something that no one has mentioned is that on top of IV antibiotics, I get respiratory treatments 4 times per day. At home I usually only get one a day. I think all the treatments makes a HUGE difference in PFTS...