This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Yes, it is 7% and not .7%. And thank you all, we will talk to our pulmonoligist/CF team as soon as possible. rosesixtyfivemother of Sam (ddF508, 2 years old)
Yes, it is 7% and not .7%. And thank you all, we will talk to our pulmonoligist/CF team as soon as possible. rosesixtyfivemother of Sam (ddF508, 2 years old)
I will certainly talk to my doctor about it. I definitely want to keep him safe. Sam cultured pseudomonas at 5 months old. He is now 2 years old and has been clear for a while. The doctors put him on .7% because of his early pseudo cultures. (Along with an active schedule of Cayston/Tobi and...
I will certainly talk to my doctor about it. I definitely want to keep him safe. Sam cultured pseudomonas at 5 months old. He is now 2 years old and has been clear for a while. The doctors put him on .7% because of his early pseudo cultures. (Along with an active schedule of Cayston/Tobi and...
My son is two and I do believe we will still use it. If there's a chance it would postpone lung damage, we're going to keep it in the schedule of daily meds.rosesixtyfive,mother of Sam (DDf508, 2 years old)
My son is two and I do believe we will still use it. If there's a chance it would postpone lung damage, we're going to keep it in the schedule of daily meds.rosesixtyfive,mother of Sam (DDf508, 2 years old)
So, you guys think the big machine that goes with the vest and the nebulizer should come with us as carry-on luggage? I know the machine that goes with the vest is worth lots and lots of money. So, we should keep it with us?
So, you guys think the big machine that goes with the vest and the nebulizer should come with us as carry-on luggage? I know the machine that goes with the vest is worth lots and lots of money. So, we should keep it with us?
Hi, All,We are taking a vacation ina few days, and it is our first time on an airplane with a child with CF, also an albuterol puffer. I want to carry the meds with me in a small lunch bag. Sam takes Tobi, HTS, Pulmozyme and enzymes daily. I don't want the medicine with the other luggage because...
Hi, All,We are taking a vacation ina few days, and it is our first time on an airplane with a child with CF, also an albuterol puffer. I want to carry the meds with me in a small lunch bag. Sam takes Tobi, HTS, Pulmozyme and enzymes daily. I don't want the medicine with the other luggage because...
<br>Our lives are very busy, but I won't Sam to eat healthy foods. We go out to eat a lot. That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
<br>Our lives are very busy, but I won't Sam to eat healthy foods. We go out to eat a lot. That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
<br>Our lives are very busy, but I won't Sam to eat healthy foods. We go out to eat a lot. That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact?
Thanks,
rosesixyfive,
mother of...
Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact?
Thanks,
rosesixyfive,
mother of...
Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact?
<br />Thanks,
<br...
I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
I hope I don't seem naive, but I wish that Skye's mother lived in a place where she could get some financial assistance. No one should have to spend the majority of their time keeping their child alive and worry about keeping their homes, cars, providing a good life for their children. I would...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.