Cystic Fibrosis Forum (EXP)

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  1. E

    What's it like to die with CF?

    this is a terrible question, but i was curious to know what its like to die with CF. what does it feel like? is it a peaceful death? i have cf btw
  2. E

    People take CF lightly

    So when someone asks me, 'What's CF?'. I really don't know how to explain it. I just say 'It's like a combination of Asthma and Diabetes but 20x more serious'. or anything similar to that. How do you explain CF? I hate when people just brush off CF like its not big deal. When in reality, CF is...
  3. E

    I really want to become CF healthy

    So last time I got my FEV (I think it's called that), I scored 106%. I fear that I have decreased by a large number. My last chest x-ray I had minor lung scarring. But I really want to get healthy in terms of my lungs. I'm at a good weight (and my doctors have given me the 'go head' sign to...
  4. E

    I probably need enzymes for medical brownies?

    So I feel like an alien sometimes. Because there are times I eat a ton of dairy or meat without enzymes, and I feel perfect. I do eat a lot of yogurt during those times, which makes me even more confused cause isn't there a nice amount of fat in yogurt?? I am a medical patient for my state. So...
  5. E

    Is it illegal to reuse an "outdated" prescription?

    Well I'd only use it if I don't have a supply of Xanax. Kinda like a back up. It works for anxiety a tad bit, just not as effective as Xanax.
  6. E

    Is it illegal to reuse an "outdated" prescription?

    So for the past year I've gone through trial and errors with my doctors trying out different prescription (ie. Paxi, Prozac, Klonopin, Xanax, etc.). About 8 months ago I asked my doctor to switch me from Klonopin back to Xanax (something I had taken previously) because I figured that worked...
  7. E

    Smoking Marijuana to breathe easier

    So about a month ago I got my official notice from the state saying I'm a legal Medical Marijuana User registered in the MM Registry. There are many times that I smoke Marijuana just so I can breathe easier, I notice that it is exactly like my Inhaler. I know what you're thinking about the...
  8. E

    Medical Marijuana

    I notice that it gives me additional appetite. Like when I'm done eating and i use MM i can easily eat even more. Like for example after 1 cup or so of pudding i get full, but after i use MM i can eat another cup or so. It also acts like my inhaler does, its like a natural bronchiodilator I've seen.
  9. E

    Medical Marijuana

    Hello. I have Cystic Fibrosis, and I was curious to know what your opinions were on CFers who use Medical Marijuana as a medicine to aide in Cystic Fibrosis. I want to know the benefits, the downsides, opinions, and facts about Medical Marijuana and Cystic Fibrosis. If you're a parent of someone...
  10. E

    I'm stupid for trying a cigarrette

    please stop trolling
  11. E

    If i dont take my enzymes with a meal high in fats and proteins and what not will I..

    Will I not digest the calories? Or will I only get calories from the foods I can digest, like veggies and fruit. I'm watching what I eat while working out and I sometimes cheat and eat high calorie foods, so what I do is I don't take my enzymes, cause my reasoning is if I can't digest it I...
  12. E

    I'm stupid for trying a cigarrette

    So I was with my cousin and his friend and they were smoking so I figured I tried one.i kinda liked it so I had a few more. The next day my cousin and I got our own pack. Now, I believe I am addicted. I am so incredibly stupid for trying it. I can go hours without one, but within 4 hrs I crave...
  13. E

    I just got that device diabetes people use, what should be my blood sugar to lose lb?

    So my blood level was at a whopping 179 yesterday. So I'm curious to know, what should it be between to lose fat?
  14. E

    Does this look like arthritis?

    Wrist Left http://i.imgur.com/8ewS21u.jpg http://i.imgur.com/PpbFz8w.jpg http://i.imgur.com/YeFuW3S.jpg wrist right http://i.imgur.com/Zli7xrX.jpg Knee left http://i.imgur.com/bzGsuEZ.jpg http://i.imgur.com/x0QTnYd.jpg
  15. E

    I need help translating my testosterone results!!

    so I can't ask for testosterone assistance?
  16. E

    I'm taking Hydroxycut hardcore elite

    And I notice it causes extreme hypoglycemia. Is this normal? I wanna lose 20 lb or so by May 5-20th. I have a be clearance from my doctor btw she just doesn't know about me taking this supplement. When I take 2 pills I notice it makes me feel sick so I'll just take one for now.
  17. E

    I need help translating my testosterone results!!

    I know you're not doctors I just need help though. Test. Total : Ref range 250-1100 I'm in 462 Test. Free : Ref range 46-224 I'm in 98.8 Test bio available : Ref range 110-575 I'm in 211.8 Sex hormone binding : Ref range 10-50 I'm 17 Globulin albumin Ref range 3.6-5.1 I'm 4.7...
  18. E

    Anybody have extreme digestive issues after eating sushi?

    So I don't always take my enzymes, and usually when I go to sushi, it's especially worse. I love sushi so much, so much that I'll suffer through the pain and long hours it gives after. Does anyone else experience diarrhea, extreme stomach pain, etc? Like it's the worst food not to take enzymes with.
  19. E

    Can testosterone cream still deepen my voice?

    what about testosterone creams?
  20. E

    Lung Washing

    So my teacher asked if I've ever had my lungs suctioned before. I had no idea what that meant so after tons of research, I found out he may be talking about a lung washing. I watched a short video about it, and it looks like it would feel amazing. But what exactly is it? Is it painful? What's it...
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