Search results

Thanks everyone again. After speaking with the doctor she put him on bactrim double strength for 14 days and neb every 4 hours. Going to try the vest again tonight. I really appreciate everyone's advice. So much easier to go through this with the group to rely on.

Thanks everyone. I am waiting for a call back from Hopkins to see if they want us to come to their ER or our local. His respiration is a little high at 33. Don't want it to get too bad and worried about overnight.

Thanks. Our CF center is 2 hours away. Is local ER a good idea if he gets worse overnight or should I make the drive? Does it hurt much to wait until tomorrow? He tried the vest twice but cried because the pain was a 9 out of 10.

Hi, My just turned 8 year old son who was diagnosed in Feb is sick. He has a fever of 100.3, pain in chest and just not feeling well. He has had 5 pneumonias since Feb, 4 close together and one we caught early in August. Last culture was H. influ and moderate staph. My question is (this is...

Hi, I get the food allergies and how that compounds things. We are now gluten, egg, corn, tree nuts, peanuts, fish, shellfish, beef, pork, and turkey free. Being allowed to add milk back (only intollerent and a slight allergy) was a BIG thing for us. We are lucky that Jusitn is such a great...

Welcome to the world of "should have been diagnosed." Justin's BMI dropped to below 3% when he started enzymes eventhough his fecal elastase went from 148 to 75 to 25 in 6 months. Is your son on enzymes? Justin has eosinophilic esophagitis and many kids with that have feeding tubes. We were...

Hi, I just posed on the other message about staph. We too have cultured staph twice in the last few months. The first time he had symptoms and then his ped treated it. The second time the Clinic said not to treat without symptoms. I am not completely sure other than increased cough (he has...

Hi, My just turned 8 year old son has cultured it twice in the past few months. First time, it was mild. Ped decided to treat because his FEV1 dropped and he was having symptoms. Clinic said only if there were symptoms. His next culture about 1 month later, he cultured moderate staph and...