Cystic Fibrosis Forum (EXP)

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  1. S

    Generic Pulmozyme

    it's cells from hamster ovaries but dornase is not generic, that it is just the name of the drug, pulmozyme being it's common name
  2. S

    How bad is smoking pot?

    while I can't tell you I think it's ever a good idea for you to smoke anything or be around those that do. I can tell you it's not against the law to have drugs in your system it is only illegal to possess, sell or buy them as well as drive impaired under the influence of any substance, so no...
  3. S

    where is the best and top-rated CF center?

    depend what your looking for as "best" an larger city will rank higher on a scale because there are more patients to bring up any average. Philly, Dallas, and Denver top a few different lists. we've moved and used 3 different centers now and care is pretty standard, there aren't allot of...
  4. S

    doctor visits feel like a fight. something always happens. what is your visits like?

    Our visits are usually a different kind of fight. It does take absolutely all day but both our boys have their visit together. Ours usually seem more like a fight to not be admitted though. It never fails that one of them starts getting some bug days before the visit and they want to jump...
  5. S

    Smoking Pot/RSO Oil

    Really....really, really??
  6. S

    Question about amniocentesis

    We did not have the test done for either of our kids. The risk was to great and the results wont change anything. Unless your considering aborting you can wait till they are born to test. I wouldn't risk the baby otherwise. Abortion was never an option for us, both of our boys have cf and...
  7. S

    Newborn always sick

    Our oldest spent most of his first year in and out of the hospital. We keep him out of daycare, and added an ultraviolet light to our air system where the filter goes. Its a cheap add to kill bugs in your heat and air being blown though house. Don't get discouraged, keep up with breathing...
  8. S

    The Kid can't stop talking about Cystic Fibrosis.

    Honesty is the best policy Both of our boys, Tanner (5) and Caleb (2) have Cf. Since day one we speak openly and honestly about cf with them. I think its important that they know and understand for themselves what is happening. Tanner is the same way, he informs his whole class as well as...
  9. S

    misplaced feelings???

    you should talk to him about it, honesty and open communication are always best. you need to find something that you can do, something you enjoy, its good to have goals. my wife, started making cakes professionally and about a dozen other things that keep her busy. maybe you could do a similar...
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