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First of all, a true friend doesn't judge or condemn you for any decisions. A true friend accepts you exactly where you are. I am 26 and have gone to my CF center alone for the past 8 years or so. Mine is 90 minutes away. When I was sick last year, I asked my Mom to come with me. When I was...

When I was born 26 years ago, they told my mom I would probably be dead by age 18-25. Here I am today, living a happy and full life. I have learned so much through this disease and am thankful God has chosen me worthy of this tribulation. The amount of self-control, discipline, and perseverance...

I'm 26 and have only been hospitalized once in my life, right before my 25th birthday. I stayed in for 3 days, went home with 3 weeks of IV antibiotics through a PICC. Ended up only completing 2 weeks because I was getting extremely high fevers and the docs concluded that they were antibiotic...

Also, I will add to this that be careful with sleep drugs. Your body becomes addicted and the withdrawals are not for the faint hearted.

I have the same issue and just started probiotics yesterday to see if it will help. I'm thin so my CF belly really sticks out.

I go through feelings of this and even was in denial about it for many years, but I've learned that it's not going to change and I have to accept it. Instead of telling yourself that you can't handle it and it's the worst thing in the world, tell yourself the opposite. Say "this is...

No known hearing issues, although a friend teases me that I cannot hear very well, but I think it's related to stuffed up sinuses. The taste of TOBI gets better - well your son will get use to it. Hang in there! Swimming is great. I still swim several times a week and it keeps my lung function...

Had a PICC line last year for the first time. Was AWESOME. I loved it. Did a course of 2 weeks antibiotics, they drew blood from it. It was awesome. I have a little scar on my bicep from it, but it reminds me to do my treatments and stay as healthy as possible. They put my PICC while I was in...

Don't stress - I've cultured them most of my life. I'm 26 and lung function at 86% and rising. I've had one hospitalization about 15 months ago. That's with not doing my TOBI during most of my teenage years and most of my early 20s too. It's not the end of the world. Keep him active, drink lots...

Lyle McDonald's diet is for people who want to lose a bit of weight because of a show or competition. It puts your body into ketosis which burns fat. Skip that - it's hard to conform to long term and you probably don't need it. Food is fuel and if you really do need to loose weight, discuss with...

I don't have a weight issue either. I'm at a perfectly normal weight for my height. I have to watch what I eat or will gain like most people without CF. I was 15 when I was diagnosed - lost tons of weight, fatigue, thirst, frequent urination, all the usual symptoms. Went in for a regular clinic...

I do fine on Cayston. It's a pain doing 3 treatments a day, mainly because I forget. It's great because they only last 2-3 minutes.

I've have sleeping issues for a few years and it's actually gotten better recently. I go for months of good sleep, then bad sleep, etc. I am actually up now because I couldn't stop coughing from this irritating little cold I have and woke myself up twice since going to bed early. I've tried...

I attribute all my health to my exercise. For years, I never did treatments and just exercised and I have made it 26 years so far. Some tips for exercising would be: do it first thing in the AM when your energy is highest, set a small goal and then go from there (example: today, I will walk 5...

I buy the generic kind at Walmart ($6 fo 60 pills, I believe). Well worth it. I notice a different. I drink a LOT of water every single day. It helps me a bunch, but my lung function is in high 80s so maybe that has something to do with it??

I am 26 and didn't have any issues with my teeth until I got my braces off (when I was 18). Now I've had several cavities and they tend to yellow quicker. I use Sensodyne Pro Enamel often and then use a whitening toothpaste as well. I also brush with peroxide and baking soda every week or so. If...

Are you CFRD? The easiest way to gain weight is adding healthy fats to your diet. Put olive oil, coconut oil, and even butter on everything. Those are little "hidden calories". Eat peanut butter, cashew butter, and almond butter. Depending on how many calories you need, consider buying a...

I never have had a weight issue in my adult life. I was 24 when I had my gall bladder out about 18 months ago. I think I lost a few pounds, but nothing major. I have since gained it back. Be careful of the fatty foods still. I ate half a hamburger and fries the other night and had a very upset...

I highly suggest a dog. I just moved from a place without a fenced in yard to a place WITH a fenced in yard, and it's been a huge help in the event I don't feel like walking him. I take him on 1-2 short walks a day and he always gets me out even if its just for a few minutes. I also struggle...

I have a tattoo on the inside of my right bicep. I've had one PICC line and they just used my left arm instead, because I didn't want a scare in the middle of my tat.