Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. S

    Mail Order Meds...in the hot weather!!

    I use UPS and FedX, no siginature required for me on any medication, they leave package at door when I am not at home. Might want to talk with pharmacy about not requiring signature. Good Luck.
  2. S

    Is there ways to raise your oxygen percent?

    Hello carly23. My fev1 has been 31% and FVC 100% for quite some time. Restiing sats 97-98, no O2 with walking around 95% exercise on treadmill 16 min. mile grade of 4.5 for 2 miles, no O2 86-87%, with O2 92-93% and HR 120 there about. Exercise has helped me, really push myself on the treadmill...
  3. S

    Mucus?

    Hydration, H2o plenty of it, then I use HTS and mucomyst. This works for me. Good luck!
  4. S

    neb machine

    FYI LC® Plus Reusable Nebulizer The gold standard in reusable nebulizers delivering fast, efficient treatments and optimal particle size. Part No.: 022F81 NDC No.: 83490-0220-28 HCPCS Code: A7005 Performance data PARI LC®  Plus Performance1 Total Output Rate (TOR) = 440 mg/min Mass Median...
  5. S

    neb machine

    FYI The DeVilbiss -Aide has been providing effective aerosol treatments for more than 30 years. The Pulmo-Aide is the only approved compressor for use with TOBI (tobramycin solution for inhalation). The DeVilbiss Pulmo-Aide is unmatched in quality and performance.   Product Highlights   Maximum...
  6. S

    neb machine

    I do check my compressors every six months (compare it to the new one, time it takes to neb 1 cc hts) to be sure it working properly. If you can not inhale much volume I agree you need a higher PSI out put compressor; for me my FVC is 4.9 liters,100%. As far as missing medicaion, if theneb cup...
  7. S

    neb machine

    I have 3 Pulmo-Aide compressors, one in the office and one in the Tv room and one in the box never opened. The ones that I am useing are over 10 yrs. old, waiting for them to die but they keep runing and runing. My neb. rx take about 3-4 hr. a day, 2hr. am and 2 hrs. pm, really try to get as...
  8. S

    Are you continuing HTS for <6?

    Hts works for me, can not say enough good things about it. Used it for 10+ yrs. As stated on previous post, I have both 3 & 7%, for me personally can not tell the difference, both help me cough mucous up and out. I use the 3% since no difference to me. One thing that I do is get well hydrated...
  9. S

    What's a healthy weight?

    5' 9" 170 lbs. 25 BMI
  10. S

    What's a healthy weight?

    5' 9" 170 lbs. 25 BMI
  11. S

    Cayston users

    1. Yes 2. Yes 3. Yes, do not know about pfts, feel good, not as wended when doing physical act. Do not cough much with either Cayston or Tobi when doing neb. Rx. Do have a good productive cough with HTS ESP. With morning rx. Have some productive with night rx. Have not had exerbations since...
  12. S

    Cayston users

    1. Yes 2. Yes 3. Yes, do not know about pfts, feel good, not as wended when doing physical act. Do not cough much with either Cayston or Tobi when doing neb. Rx. Do have a good productive cough with HTS ESP. With morning rx. Have some productive with night rx. Have not had exerbations since...
  13. S

    Struggles

    I worked in a hospital for 35 yrs., took care of all kiinds of sick patients, aids to pneumonia or what ever. I was no more sick than my fellow workers as far as catching bugs, I diid use mask and gloves when appropriate. Have met many Cfers at the CF walks in yrs. past as well as this yr. . We...
  14. S

    Struggles

    I worked in a hospital for 35 yrs., took care of all kiinds of sick patients, aids to pneumonia or what ever. I was no more sick than my fellow workers as far as catching bugs, I diid use mask and gloves when appropriate. Have met many Cfers at the CF walks in yrs. past as well as this yr. . We...
  15. S

    Will VX809/770 be effective in reducing mucous production?

    I agree with Printer regina65, I have both 3% and 7 % really can not tell the difference, so I use the 3.
  16. S

    Will VX809/770 be effective in reducing mucous production?

    I agree with Printer regina65, I have both 3% and 7 % really can not tell the difference, so I use the 3.
  17. S

    Read this! Aggressive antibiotic treatments may not always be the best answer

    I agree nocode, do oral first then hit with big gun if needed. Like nocode, low fev1, no IVs in yrs. only one maybe two in my adult life. Keep a bottle of 750 levaquin, rarely have to take maybe once a yr. if that, only if I get increased cough for more than a few days. Wash hands regularly and...
  18. S

    Read this! Aggressive antibiotic treatments may not always be the best answer

    I agree nocode, do oral first then hit with big gun if needed. Like nocode, low fev1, no IVs in yrs. only one maybe two in my adult life. Keep a bottle of 750 levaquin, rarely have to take maybe once a yr. if that, only if I get increased cough for more than a few days. Wash hands regularly and...
  19. S

    Denied by Social Security

    Approved on first go around, heard from them in about 3 wks. It was based on my FEV1 and the fact that I nebulized Tobi every other month. This was back in 2004. I called SSDI and applied and they ask me what my last day of employment was and I told them today, actually called from work. Letter...
  20. S

    Denied by Social Security

    Approved on first go around, heard from them in about 3 wks. It was based on my FEV1 and the fact that I nebulized Tobi every other month. This was back in 2004. I called SSDI and applied and they ask me what my last day of employment was and I told them today, actually called from work. Letter...
Top