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Matt, I had the same symptoms the other month and had a chest CT, and it was pneumonia. Then I did IV therapy for 3 weeks. I'm thinking if you have no improvement, call your doctor again, and have an X-ray (mine does CT's because they show more detail). Good luck to you.

Hey Enzo, When your doctors checked your blood, did they check your iron levels? People with CF are notoriously have low iron levels. My clinic usually only checks iron when I am on IV's, otherwise not. A few years ago, I had a major complication with anemia (my hematocrit/red blood cells...

Pray to Buddha, FUNNY!!

I can understand why you needed to rant! I don't know what families are thinking sometimes. A couple of key players in my family like to do the "oh, I'm not THAT sick, just bronchitis, but I am on antibiotics, so I'm not contagious" story. Then I look like the jerk who doesn't want to get...

This is a great topic of conversation and every CFer has to deal with this. I am upset for you that your BF doesn't check with his family to see if they are sick before he brings you over to visit. Esp. since you got sick from them and were hospitalized 24 days with a 3 month recovery AND your...

You aren't alone. I my CF friends ( girls and guys) have a buddha belly. I don't know why this is. I always thought it might be due to our malabsorption issues, even though we take digestive enzymes. It's really REALLY hard to find jeans that fit right and don't smush me in the stomach by...

Come on people. The person was asking a question and doesn't need condescending answers. Asking him how old he is, telling him fat processing is CF101, and complaining about his double-negatives is unacceptable. Isn't this forum supposed to help, not hurt.

CF is very demanding. There are so many meds to juggle and then when you get sick and really need rest, you get to take more meds or IV's. We all feel like you do, esp those of us who are sicker and have transplants on our radar.The best advice I can give you as a fellow CFer Iis to get out of...

That is precious! And very true! Thanks for sharing.

Do you have an asthmatic component to your CF? Every now and then dnase makes me have asthma, because I have a very strong asthmatic component. Sometimes I only do dnase once a day if that happens. But if you are feeling worse overall, then maybe you are sick and need to call your clinic...

One more thing: I would definitely take them up on their offer to try to get her accessed under X-ray to get a more clear diagnoses. If it is able to be accessed even though it's tilted (which makes me hopeful that is the case, esp since you said that Children's was able to access with no...

I am sorry to hear about your daughter's port problems. I know that is very stressful. What type of port does she have? When you say it doesn't work, does that mean it cannot be accessed at all? Or does it simply not flush? I have a Bard power port and don't get a blood return with a...

Goodluck on your disability review! Is this for SSDI? I am not on SSDI, BUT I am on disability from the government. I would only submit the required paperwork. Sometimes if you submit extra paperwork that is not required, it may slow down the process. You could call the office and ask if...

Since you are not coughing up 'pure' blood, then it may be inflammation or irritation, maybe from the hypertonic saline, like your doc said. I used to cough up pure blood, but I don't want to scare you with my story. My doc used to tell me to stop CPT and pulmozyme for 24 hours after I stopped...

I use an electronic nebulizer called the Trio by Pari. It's small (4-1/2 x 4-1/2), super-lightweight (1 pound) and makes NO noise. It is exactly like the electronic nebulizer called the Altera by Pari that I do my Cayston in. This post is helpful because I didn't know that a carry-on with...