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I ALWAYS wear my purple CF bracelet. I have not taken it off my arm in 3 years. My hubby also has not taken his off. They are starting to get a bit worn. It is the purple bracelet that says..... BREATHE EASY.....CURE CYSTIC FIBROSIS Anyone know were I can order some more. For the life of...

What I have learned from the people of this site................. Number one and most important MY DAUGHTER IS NOT GOING TO DIE TOMORROW. SHE CAN LIVE A FULL LIFE AND DO ANYTHING SHE PUTS HER MIND TOO! THAT I CAN CARE ABOUT PEOPLE I HAVE NEVER SEEN, MET, AND WILL PROBABLY NEVER MEET! THE...

I don't know if any of ya'll will think this is funny but my hubby and I were just sitting outside chatting and he came up with the funniest idea for a t-shirt for allie's new store. QUARTERLY TUNE-UPS- $843.62 MONTHLY MEDICATIONS- $2,649.15 MEDICAL EQUIPMENT- $1,794.65 LISTENING TO YOU...

I was just reading treble's post about insurance. Courtney's father is in the Marine Corps so we are VERY lucky that we do not have to pay for Courtney's doctor bills and medications. I was SHOCKED to read how much Ultrace cost. I am going to list Courtney's medicine and if anyone can tell...

Well, I had my stress test done today. Man, that was hard work on that treadmill! It was good news! I have no clogged arteries, my blood is flowing properly, I have a few leaky valves, but nothing to worry about. The reason for my palpatations and feelings of skipped heart beats is...

We are heading out for our Great Strides Walk in a couple of minutes. I know many others have their walk today also. Wanted to tell everyone good luck and HAVE FUN! Seana

Do any of ya'll like George Carlin. My hubby and I are HUGE fans. He is SOOOO funny. Well, he was in town last night. My hubby got tickets for me for Mother's Day. I could not wait to see him!!!! He comes on stage and says in December he had to have angioplasty. He then says that he has...

Hi all. I wanted to share this photo with everyone. You can not see his face, but the picture is of my brother-in-law, Anthony out in Iraq. He is the one kneeling. It is on MSNBC. He is surveying a damaged bridge. We are all VERY proud of him, and can't wait for him to get home! Seana...

Anyone else having trouble the past three days getting onto the site? Seana

Well......I promised ya'll I would post the site once Courtney's article came out. I am pleased with the upbeat way they show our family, but wish they would have put in a lot more details about CF. There are a few typos, like they put Courtney's last name wrong, and that the walk has only...

As soon as I think thinks are going to be okay health wise at home sh** hits the fan. I took my oldest daughter, Lauren (no CF), to the doctors today because she has had a cough for 2 weeks and it was getting REALLY bad. SHE HAS WALKING PNUEMONIA! The doc said since she is healthy and in...

ALLIE, THINKING OF YOU A LOT TODAY. HOPE YOU ARE HOLDING UP! SEANA

We got our order of CIB VHC yesterday. The only flavor I could find it in is vanilla. I tasted a sip of it, and Courtney drank one last night. Other than it being quite thick, it is not to bad. Courtney added some chocolate syrup to it because she is not a big vanilla fan, but she drank it...

I cracked up laughing when I saw you posted the site to therapy buddy!!!!! This guy was on American Inventor. The therapy buddy says in a slow womans voice "EVERYTHING WILL BE ALRIGHT". IT IS SO CREEPY!!!!!!!!! LOL Then they show the GROWN MAN standing there with therapy buddy around his...

I have not been able to get on the computer much lately, but I wanted to let you all know some good news. First, Courtney had an appointment with her new pulmo. doc and thinks were great. Her FEV's were 106%. We were SOOOO excited to get that great news! Second, I just found out today that...

Amy, I started Singulair and Nasonex 2 months ago for severe allergies to cats. We have two cats at home that are part of the family and I can't imagine getting rid of them! Everything has been GREAT up till two weeks ago. I am now back to coughing all day, using an albuterol inhaler several...

For those of you that have not read my blog.............. Something happened the other day to make me realize that I jumped to conclusions, and should not have said I was leaving the site. I apoligize (sp) to you all for causing a ruckus the other day. You all are my support system, and I...

I sat down and e-mailed our local newspaper about 15 minutes ago and told them that we needed exposure about the Great Strides Walk coming up. I told them a little about Courtney and CF. THEY CALLED ME WITHIN 15 MINUTES! They said they would love to do an article and someone will be here next...

First let me say thank you again for all of the advice. Courtney saw the gastro doc and it was GOOD NEWS. The diagnoses is SHE IS FULL OF SH**........lol She is full of poop! The back pain is from softball, she pulled a muscle. The doc says the only way to help that is for her to strengthen...

I guess I can't stay away from this site because you guys are the only one's I can go too to ask questions. Courtney is now feeling like she is going to throw up and is feeling REALLY bad! Today is the last day of school before the Easter break and they have a pep rally, and they can wear...