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My first symptom would be my salty sweat and my lack of weight gain. Unfortunately for me those things were classified as something else, my lack of weight gain was attributed to my ADHD, at the time I did not know that my sweat was saltier than normal. It wasn't until High School that I...
Technically speaking yes pulmonary is my primary, but for the purposes of book keeping my medicaid card lists a primary that I actually only see once a year for my PAP's
I average 2 PICC's a year the only problem I've encountered is I can't do the bedside PICC team, also I just had a Stent put in 7 months ago, apparently I had some blockage in my vein from the antibiotics
im not sure if your clinic is tied to a hospital, but mine is, and when I am concerned I call the hospital switch board and ask for the Pulmnologist on call, you have to wait a bit for them to call you but outside of contacting your CF nurse or doctor thats the best option, get an opinion before...
I've been living with my lung function in the 30's for the last 9 years, ever since I was diagnosed and while I have periods when I feel like that I've adjusted, no cystic patient leads a 'normal' life we have too many things to do to help remain healthy but I would suggest exercise, over time...
Just a guess on my part, but since the enzymes are proscribed I'm pretty sure it's not legal. On the other side I know several people who are willing to help if they have back stock and know someone who needs it. I guess it's up to the risk your willing to take, I hate wasting meds, expecially...
Every time I've coughed up blood sans once it was at night while I was laying down for the night, it always struck me as odd when it happened.
*On a side note a common problem I have is with telling just how much blood I've coughed up, I've tried spitting into cups and using my phones camera...
I'm 30, I got diagnosed in 2008, I'd been having breathing issues since high school. Honestly I never went to a doctor, no insurance and I'm not the type to run up bills I can't pay, I got disability in 2007 for my scoliosis, I had a 75° curve in my spine, my surgery was pushed back because I...
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