Cystic Fibrosis Forum (EXP)

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  1. L

    Survival of the Sickest

    I was e-mailed this news article today. I thought a few here on the forum might be interested. Goes along the lines of the whole CF/TB thing. NOTE: This has to do with a form of evolution, so if you're offended by that prospect, you might want to skip this! SURVIVAL OF THE SICKEST Alan Gold...
  2. L

    CF and Anemia?

    Hello, all. Just to refresh your memories, I was sent to the hospital on Tuesday with high fevers, chills, severe SOB, and just generally feeling like crap. Thought it was because of the MRSA. Well, it turns out that my latest sputum culture showed only normal staph and psudo. No MRSA...
  3. L

    MRSA

    Hello, all. I have a fever right now, and I'm a little lightheaded, so if this question makes no sense, let me know and I'll rephrase it... First, the background. For the past five months I've been getting a staph infection religiously, ever 25-35 days. High fevers, excessive amounts of...
  4. L

    This is annoying...

    Is it just me or does this forum no longer recognize spaces between paragraphs? I've been using HTML (the < br > code) to make spaces in my messages, but is there a trick I don't know? Is everybody having to do this or is it just me?<br> </br>Thanks,
  5. L

    Letter to Santa

    An interesting way to deal with those who whine about Christmas...<br> </b><a href="http://www.illwillpress.com/xmaslet.html">Click Here</a>
  6. L

    No Surgery!

    Seems I'm not going under the knife, after all. My E.N.T. has decided after looking at my newest CAT scan that I don't need invasive surgery. She actually said my sinuses look very good for a CF patient with chronic sinusitus! Just thought I'd give you all an update. Now I can continue my...
  7. L

    I'm Back Again...

    This...really...bites. I'm back on the juice AGAIN! This makes the third time in three months! Sorry I haven't stayed in touch, but when I go on I.V.'s I stay with my parents, and because of their antivirus program I can't get the posting script to load over there... Anyway, I'm back at my...
  8. L

    I'm Still Alive...

    In case anyone wondered about me *coughcough*  I'm still around.  Got caught up in the hospital again...very bad issue there (at least for me), but its been resolved and I'm back home.<br> <br> Just thought I'd drop a line.
  9. L

    In case anyone actually misses me...

    ...not that I think anybody really will, but just FYI, I won't be posting for a week or so.  Headed out of town to Ocean City, Maryland for the bike fest (Harley-Davidsons, of course), and we're driving there.  So I'll be away for a while.  Catch you all later!
  10. L

    CF and Tuberculosis

    We all know that CF is more prevalent in those of European decent, but my mother received a news article in her e-mail today that was very interesting.  I can't remember the exact date mentioned, but a long time ago in Europe there was a nasty outbreak of tuberculosis (can't remember if this was...
  11. L

    Getting a Tattoo...

    Alright, I know this isn't totally CF related, but being inexperienced with tattooing, I had a few questions.  I'm going in tomorrow to get a tat on my back, and I had a few questions for those of you who've had one done before...<br> <br> 1.  About how long did yours take and how big was your...
  12. L

    To IV or Not to IV...

    Alright, I come seeking advice from the almighty experts...lol.  I'm having a dilemma.  I can't decide if my recent decline in health has been due to infection or exhaustion.  I was pretty active yesterday, more so than usual, and now I just have zero energy and a fever to boot.  I've been...
  13. L

    Moving Out

    Recently, my boyfriend of 5 years and I have been looking into getting an apartment for ourselves.  This will be my first time away from home.  I don't work, but receive SSI ('bout $400 a month).  The apartment complex we're looking at is about 1/8 of a mile from my house (I could walk if I had...
  14. L

    ATTENTION THOSE OF YOU WITH HEART ISSUES!

    Alright, just got back from the doc. As some of you may know, I've been having a slight tacycardia going on. I've seen a few others on this forum having the same issue. Well, I had both an EKG and a heart echo done. Bottom line; nothing's wrong! My cardiologist looked at the readings and...
  15. L

    In a Total Rut...

    Normally, I don't vent on this forum, and I'm not even sure why I'm doing it now. Maybe I'm just looking for feedback on how you guys de-stress, because I could use some ideas. First off, I went into clinc the other day for the results of my tyroid test. Originally, my doc thought my heart...
  16. L

    Insomnia...

    ...is it CF-related, just another one of those lovely side effects? For the past four days I haven't slept well at night, and I've been getting maybe an hour nap in the day tops. Its driving me nuts. I've either woken up in a sweat, can't get comfortable, or just cannot shut my eyes for more...
  17. L

    Insanity in the A.M.

    Okay, getting a little tired of everyone bashing on just Allie and Sean for doing something odd in the middle of the night, so I thought I'd start this thread just to put a humor twist on the whole thing. I'm sure we've all done crazy crap we've later regretted in the middle of the night out of...
  18. L

    Drug Reaction?

    Hello, all. Got a question for you. Right now, I'm on home IV's with Meropenem, Tobra, and an oral called Zyvox. For the past two nights, I've gotten a really strange reaction. The Tobra is only run once a day, at about 8 PM. The Meropenem is every 8 hours, and I run the two meds back to...
  19. L

    In Case Anyone Missed Me...

    I've been gone for a while, but I'm not dead. I had a really nasty staph infection. I ended up with a fever of 102.7 Wedensday, even after trying oral meds, so they admitted me through the ER and kept me until today, my birthday. While I was there I had a chest x-ray done. Apparently the...
  20. L

    Has Anyone Ever Tried A Saltwater Mist?

    Hello, all. My dad's friend sent me this article through my e-mail about a new study that saltwater mists can help reduce pus and infection in the lungs of CF patients. This isn't a nasal lavage, either. Its inhaled. Says that inhaling a mist with a salt content of 7-9% improved lung...
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