Cystic Fibrosis Forum (EXP)

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  1. E

    OH MY!

    They sent them to Ambry to have them done. He had so many symptoms that led them to test him... constant cough, unexplained lung issues ( he has no allergies), smelly BM's, he is very skinny, etc. They sent him for sewat tests and they were positive except for one borderline. Why do things have...
  2. E

    OH MY!

    They sent them to Ambry to have them done. He had so many symptoms that led them to test him... constant cough, unexplained lung issues ( he has no allergies), smelly BM's, he is very skinny, etc. They sent him for sewat tests and they were positive except for one borderline. Why do things have...
  3. E

    OH MY!

    They sent them to Ambry to have them done. He had so many symptoms that led them to test him... constant cough, unexplained lung issues ( he has no allergies), smelly BM's, he is very skinny, etc. They sent him for sewat tests and they were positive except for one borderline. Why do things have...
  4. E

    OH MY!

    They sent them to Ambry to have them done. He had so many symptoms that led them to test him... constant cough, unexplained lung issues ( he has no allergies), smelly BM's, he is very skinny, etc. They sent him for sewat tests and they were positive except for one borderline. <br />Why do things...
  5. E

    OH MY!

    My son had 3 positive sweat tests and one borderline teat. They did the genetic testing but can not find and mutations. What does this mean?? I am so confused. The doctor said he has CF but now what do I think??
  6. E

    OH MY!

    My son had 3 positive sweat tests and one borderline teat. They did the genetic testing but can not find and mutations. What does this mean?? I am so confused. The doctor said he has CF but now what do I think??
  7. E

    OH MY!

    My son had 3 positive sweat tests and one borderline teat. They did the genetic testing but can not find and mutations. What does this mean?? I am so confused. The doctor said he has CF but now what do I think??
  8. E

    OH MY!

    My son had 3 positive sweat tests and one borderline teat. They did the genetic testing but can not find and mutations. What does this mean?? I am so confused. The doctor said he has CF but now what do I think??
  9. E

    OH MY!

    My son had 3 positive sweat tests and one borderline teat. They did the genetic testing but can not find and mutations. What does this mean?? I am so confused. The doctor said he has CF but now what do I think??
  10. E

    Cleaning

    What type of cleaning products does everyone use that does not leave alot of fumes? I usually have to clean when my son is out of the house but all the fragrences are so harsh that he can still smell them when he gets home. Does anyone have any suggestions on products that clean really well but...
  11. E

    Cleaning

    What type of cleaning products does everyone use that does not leave alot of fumes? I usually have to clean when my son is out of the house but all the fragrences are so harsh that he can still smell them when he gets home. Does anyone have any suggestions on products that clean really well but...
  12. E

    Cleaning

    What type of cleaning products does everyone use that does not leave alot of fumes? I usually have to clean when my son is out of the house but all the fragrences are so harsh that he can still smell them when he gets home. Does anyone have any suggestions on products that clean really well but...
  13. E

    Cleaning

    What type of cleaning products does everyone use that does not leave alot of fumes? I usually have to clean when my son is out of the house but all the fragrences are so harsh that he can still smell them when he gets home. Does anyone have any suggestions on products that clean really well but...
  14. E

    Cleaning

    What type of cleaning products does everyone use that does not leave alot of fumes? I usually have to clean when my son is out of the house but all the fragrences are so harsh that he can still smell them when he gets home. Does anyone have any suggestions on products that clean really well but...
  15. E

    HELP

    The Cf clinic called me back and they told me to take him to prds. I took him right away and just like Harriett said they told me he was clear but said all of his issues are in his sinuses. He put him on Augementin for 10 days. The pulmonologist was not even the one to call me back it was the...
  16. E

    HELP

    The Cf clinic called me back and they told me to take him to prds. I took him right away and just like Harriett said they told me he was clear but said all of his issues are in his sinuses. He put him on Augementin for 10 days. The pulmonologist was not even the one to call me back it was the...
  17. E

    HELP

    The Cf clinic called me back and they told me to take him to prds. I took him right away and just like Harriett said they told me he was clear but said all of his issues are in his sinuses. He put him on Augementin for 10 days. The pulmonologist was not even the one to call me back it was the...
  18. E

    HELP

    The Cf clinic called me back and they told me to take him to prds. I took him right away and just like Harriett said they told me he was clear but said all of his issues are in his sinuses. He put him on Augementin for 10 days. The pulmonologist was not even the one to call me back it was the...
  19. E

    HELP

    The Cf clinic called me back and they told me to take him to prds. I took him right away and just like Harriett said they told me he was clear but said all of his issues are in his sinuses. He put him on Augementin for 10 days. The pulmonologist was not even the one to call me back it was the...
  20. E

    HELP

    it is more the pulmonologist that gets snippy. His CF doctor is ony there 1 day a week and he is the only one that is there. I do like his CF doctor and like I said I am new t this. They know me by first name.. thats pretty bad! LOL My friends pediatrition wont even see her daughter unless it is...
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