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I am a speech pathologist and I work with kids age 0-3. My CF has become a little more challenging lately, so I need to think about germs more. I may even be dealing with a tx in the future, though I am very able to work right now. In my profession, I go into people homes and work 1:1 with a...

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark...

OK, so I was excited that the foundation has a new brochure out to educate school administrators. I thought that would be great as we get close to Great Strides and get our daughter's school involved. What a great tool to have in educating participants. So someone please tell me why the CF...

My husband and I watched SICKO last night. I am just curious how much all of us are paying for some of our medications. I am sure it varies here in the US. I would also like to know how much some of you who are not in the US have to pay. Here are some of my costs: Monthly Premium: $320 for the...

Does anyone know of a good website you can go to to look up report cards for transplant centers around the northeast. Something that shows the number done, survival rates, wait time.

All of you out there who have been through this please help. I am really frustrated today<img src="i/expressions/face-icon-small-smile.gif" border="0"> You would think that with all of the issues involved in considering a lung tranplant (ie medical, insurance, financing) that one of those things...

Does anyone know of any benefits to switching to Symbicort? I have used Advair for almost a year now and I love it. It has made a huge difference in my quality of life; however, I have one of those PIKO hand held FEV1 monitoring systems and I notice that a few times during the day my FEV1 drops...