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So, we talked extensively with our Pedia yesterday and proposed a plan of attack. It appears that the starting point of the problem, is always the nose. My daughter gets stuffy, which is probably due to sinus issues. The since these symptoms occur so fast after she gets off of an antibiotic, it...

Thanks Anne, My wife and I are up now taking turns soothing her cough. She had sinus surgery about 2 years ago, she was impacted in har sinuses but has not had much difficulty since. I do believe that the issue stems from the stuffyness that occurs, however she always blows out clear stuff...

Thanks Luke, I feel that they are just throwing stuff at her. We had a really great Doctor at Childrens, he asked probing questionsand truly tried to get to the root of the problem, but since he was so good, another hospital swept him away. Our Doctor now just treats the symptoms, we could be...

Thanks Luke, XopenX? I haven't heard of it. My daughter is on Atrovent as a bronhcodialator, she was on Abuteral but there appeared to be no diff with Atrovent. We go to a Level 1 CF clinic (Boston Childrens), and supposedly have the best (Harvard Trained) Pulmonologists in the world. I...

Thanks for the responses, also of mention is that my daughter does not culture for anything other than staph right now. We completely understand that antibiotics stay in the system after a use...they also take at least a few days to work. When we tell the doctor that she instantly responds, the...

For the past 2 years my 7 year old daughter with CF has been going through the same cycle. While she is on oral antibiotics (bactrim and others), she is fine, no coughing, no sneezing, no cf symptoms. As soon as she comes off the antibiotic she starts to cough, (like the same day). Within...