Cystic Fibrosis Forum (EXP)

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  1. M

    lowest lung function

    A question for you all. Would be nice if some of you can share as Im trying to gauge perspective and asking this for a reason. This is for people with really low lung function or people who have at one point had really low lung function. Can you please state the lowest lung function you have...
  2. M

    people using/on oxygen need some input

    Thanks for the input I have a sleep study in january but its coping until then that's the issue I am on 4L but i had turned it up to 5 to keep sats up but after talking to the docs they said not to as i do retain some co2 from the last test they did (maybe i retain more now ill soon find out)...
  3. M

    people using/on oxygen need some input

    Need some input from people who are using oxygen. I have been on o2 for a little while now but never been told or had it tested out properly to see what i should really be on. Currently i am on 4litres of o2 and my sats are around 86-94 when IDLE When i move around or walk upstairs etc...
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