Cystic Fibrosis Forum (EXP)

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  1. J

    Getting a Job

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Emily65Roses</b></i><br>How long did you try to fight it, Jenna? And were you doing it yourself, or did you have a lawyer?<hr></blockquote> I really didn't try to fight it. It was all by myself, too - no lawyers. I was basically told that it...
  2. J

    university and Cf

    When I went off to college, I did not have a vest at the time. Boy, I could have used one... I went to the local hospital to get treatments every day. I had a roommate / friend that could have done my treatments , she was my best friend at the time, but I didn't want to be tied to her, and I...
  3. J

    Getting a Job

    I tried to get SSI, but I was too healthy. I even didn't do so hot in my breathing test they sent me for. I know that's awful, but I could have really benefited from it at the time... I don't get why some people get it but I can't???
  4. J

    crazy cfers?

    I think about Sexoring 24/7. Sometimes I think I think like a guy! Movies, books - dull to me unless they are about S~E~X...CF Related? Who knows. Maybe Creon 10 does a little more for ya than just settle your stomach. LOL
  5. J

    Telling people about Cystic Fibrosis?

    I feel that the majority of the people in my life do not deserve to know about my CF. I have had very annoying experiences before when telling people - such as they'd ask me if I was okay every time I farted, or asked me if I was cold every two seconds. Then on top of that, they would usually go...
  6. J

    quick question...

    I have heard that we can't.. But i'm not positive.
  7. J

    Tobi Refrigeration Question

    Hey Guys I will be staying in a hotel this week for my work conference. I just remembered that I forgot to request a room with a refrigerator. Is it a requirement for TOBI to be refrigerated? I realize I could take a cooler with me, but I am just curious if it would be the end of the world if...
  8. J

    going away

    If you don't go through something, you aren't going to understand what it is. I feel dumb a lot reading other people's posts... And if I'm curious enough, I'll come right out and ask... I don't think anyone here thinks you are dumb... I think everyone here is patient and willing to explain.
  9. J

    Adults Only Sex stuff

    Well, anything with ... well, me on top, will always get me coughing.
  10. J

    favorite song

    Anything by Nine Inch Nails and Violent Femmes
  11. J

    Big Belly Blues

    Did it hurt? Is that something the doctor has to recommend or can you just ask him/her to do it?
  12. J

    Big Belly Blues

    Hey Everyone I have to attend a gala for work here in about two weeks. My tummy seems to be getting bigger and bigger. What types of foods should I avoid before then to help it shrink a little? I tried on my dress tonight, and I look extra pregnant. :( Thanks! Jenna, 25 w/ CF
  13. J

    What Makes You Cough?

    Here are the main things that make me cough: Smoke Perfume Strong Scented Candles Lotion That gel hand sanitizer stuff... I hate that. Strong mints Really Cold Iced Tea Shaving Cream This may sound weird, but I get tickles in my throat whenever someone touches my face or ears just right. Makes...
  14. J

    Ladies Only - Your Cycle and Your CF

    I don't know if this has already been done or not, but I was wondering about what all you ladies on here go through during that time of the month. I know that my lung function drops, and my stomach cramps so bad that I can't do my vest - the movement just kills me. Jenna, 25 w/ CF
  15. J

    Finding Friends with CF

    No, I dont' have Cepacia. I am not even familiar with this, as I posted on another thread earlier. Thanks for the great advice. Promoting awareness is something we should all do and it sounds like a great way to meet ppl.
  16. J

    Finding Friends with CF

    No, I dont' have Cepacia. I am not even familiar with this, as I posted on another thread earlier. Thanks for the great advice. Promoting awareness is something we should all do and it sounds like a great way to meet ppl.
  17. J

    Referal/Suggestions

    <blockquote>Quote<br><hr><i>I have actually seen the Dr. in Memphis, and I am not impressed at all. He seems to be quite aloof and unopen to questions that I pose. I am uncomfortable with the quality of the treatment as well as the "bedside manner" of the physician. I am to the point now where a...
  18. J

    Lung Transplant Testing

    What happens after the transplant?? Is it a long recovery? What all do you go through - is it a lot of pain? How long is one out of commission? Curiosity...
  19. J

    B. Cepacia info

    This Cepacia sounds scary. I have actually never heard of it. So it is diagnosed from a sputem sample?? I went to the doctor today and should be hearing the results from all of my tests in a couple of days. This has me paranoid <img src="i/expressions/face-icon-small-blush.gif" border="0">
  20. J

    B. Cepacia info

    This Cepacia sounds scary. I have actually never heard of it. So it is diagnosed from a sputem sample?? I went to the doctor today and should be hearing the results from all of my tests in a couple of days. This has me paranoid <img src="i/expressions/face-icon-small-blush.gif" border="0">
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